About the IHA

The International Huntington Association (IHA) is a federation of national voluntary health agencies that share common concern for individuals with Huntington’s Disease (HD) and their families. Each agency promotes lay and professional education; individual and family support; psycho-social, clinical and biomedical research; and ethical and legal considerations related to Huntington’s Disease in its respective country.

Huntington’s Disease (HD) is a neurological disease for which there is presently no known cure of effective treatment. HD causes gradual physical  emotional and cognitive deterioration. Symptoms include involuntary jerking movements of the limbs, face and trunk; increasing difficulty with communication, swallowing and walking; problems with planning, organisation and initiating, as well as personality change.

The disease usually strikes in the prime of life (age 30-45) and may appear earlier or later. Every child of an HD parent has a 50:50 risk of inheriting this genetic disease. There is a gradual deterioration over 10 to 25 years, leading to total incapacitation and eventual death.