Young people

Whether a young person is at risk, has been diagnosed or is relative of friend of something with HD, they face many questions, issues and need a source of information they can trust and is written in their language.

Fortunately, HDYO (HD Youth Organization), an association founded by young people from HD families around the world exists to help young people and their parents face the challenges of HD.

How is HDYO funded?

The money to initially launch HDYO was raised by young people working on the project, through various acts of fundraising. Now, HDYO is financially supported and backed by the Huntington’s Disease Associations around the world – who each donate an annual sum to the HDYO cause, which enables HDYO to create more support, educational information and opportunities for young people impacted by HD around the world.