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INTERNATIONAL HUNTINGTON ASSOCIATION
For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.
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HD FOCUS: NEWS ACROSS THE GLOBE
A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.
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BE EMPOWERED BY TANITA ALLEN
The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.
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Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

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Set up your local association

If you want to start your own association to support HD, we can help you understand how

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Help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

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Recent News
HD Blog

One Test, Many Consequences

Why Genetic Testing for Huntington’s Disease May Be Meaningful for Some People A decision no one takes lightly The question of undergoing a genetic test for Huntington’s disease

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March 18, 2026
HD Blog

Care Home Communication

This document outlines key areas to share with your loved one’s care home staff. Please note, the information below is based on personal struggles/challenges with care homes experienced

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March 5, 2026

Upcoming Events

HDYO's North American HD Young Person Camp

  • Camp St. Charlest, Maryland, USA
  • Aug 10-14 2026

MENA Congress for Rare Diseases

  • Abu Dhabi, UAE
  • Sep 03-05 2026

EHDN 2026

  • Kraków, Poland
  • Oct 22-24 2026

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