International Huntington Association – A Global Effort to Help People with Huntington's Disease

INTERNATIONAL HUNTINGTON ASSOCIATION

For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.

See what we've been doing

HD FOCUS: NEWS ACROSS THE GLOBE

A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.

BE EMPOWERED BY TANITA ALLEN

The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.

Read the column

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If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

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If you want to start your own association to support HD, we can help you understand how

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Your donation will help us supporting individuals and families that are affected by HD

Recent News

Be Empowered by Tanita

06 November 2025

Finding Gratitude in a Body That Feels Unpredictable

There are mornings when I wake up and my body feels like a stranger. Some days, the movements are gentle, barely a whisper under the surface. Other days, they arrive...

03 November 2025

uniQure Provides Regulatory Update on AMT-130 for Huntington’s Disease

November 3, 2025 Dear Huntington’s Disease Community, We issued a press release today announcing that uniQure received feedback from the U.S. Food and Drug Administration...

14 October 2025

ADORE-DH - Potential Stem Cell Therapy

ADORE-DH was a Phase II trial of a potential stem cell therapy for HD. Sponsored by AZIDUS Brasil (a full-service clinical research organization), this randomized,...

Be Empowered by Tanita

13 October 2025

How to Talk About HD Without Feeling Like a Burden

Before I speak about Huntington’s disease, there’s often a pause in my chest. It’s not just the facts I’m weighing it’s the fear of how they’ll land. Will the listener’s...

24 September 2025

uniQure Announces Positive Topline Results from Pivotal Phase I/II Study of AMT-130 in Patients with Huntington’s Disease

September 24, 2025 PDF Version ~ Pivotal study met primary endpoint; high-dose AMT-130 demonstrated statistically significant 75% disease slowing at 36 months as...

Be Empowered by Tanita

22 September 2025

10 Signs You’re Due for a Self-Care Reset

Some days, my body speaks before I’m ready to listen. My balance wobbles, my movements grow sharper, my speech feels slower to form. Living with Huntington’s disease...

18 September 2025

Skyhawk Reports Data on Cohort C

Earlier today, Skyhawk provided the below update on Part C of their SKY-0515 Phase 1 trial. —-Community Letter—— Dear Skyhawk friends and colleagues,...

Be Empowered by Tanita

05 August 2025

5 Rituals That Keep Me Sane With HD

1. Morning Grounding Ritual Purpose: Create a calm, intentional start to your day Before my feet touch the floor, I pause. I place my hand over my heart or my belly...

25 July 2025

Prilenia and Ferrer Provide Update on European Regulatory Process for Pridopidine in Huntington’s Disease

July 25, 2025 NAARDEN, Netherlands & WALTHAM, Mass. & BARCELONA, Spain–(BUSINESS WIRE)– Prilenia Therapeutics B.V. and Ferrer today announced...

Be Empowered by Tanita

22 July 2025

The Label of ‘Warrior’: Do We Need It to Feel Strong?

“You’re such a warrior.” People say it with admiration, as if it’s a badge I should wear proudly. But what if I don’t always want to be a warrior?...

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EHA Conference

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Sep 25-28 2025

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