The International Huntington´s Association (IHA) is a non-profit umbrella organization, made up of local associations all over the world. Established in 1974 by Margaret Guthrie, it now represents more than 250,000 individuals and member associations in South and North America, China, Australia, India, Middle East and Africa.
OurMission
Our Mission is to improve the lives of individuals and families who are affected globally by Huntington’s Disease.
OurObjectives
1. Raise awareness of Huntington’s Disease
2. Enable national associations so that they can provide support for local HD families
3. Encourage cross border networks and exchange of know-how
4. Promote active involvement in clinical research
Roche/ Genentech announce that Phase II GENERATION HD2 study is now open. This is great news for the international community since it is planned to run in 15 countries (Argentina, Austria, Australia, Canada, Denmark, France,
Novartis shared today the difficult news that they are stopping the VIBRANT-HD study of Branaplam, after some participants devoloping side effects. Read the full Novartis letter Even if this news can be disappointing, the HD