International Huntington Association – A Global Effort to Help People with Huntington's Disease

INTERNATIONAL HUNTINGTON ASSOCIATION

For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.

See what we've been doing

Rare Disease Day 2025 Campaign

The International Huntington Association, in collaboration with the European Huntington Association, is organizing a campaign for Rare Disease Day 2025, on the 28th February. The slogan for this year's RDD is "More than you can imagine", so we had the idea to show that people in the HD community are more than just the disease. For that, we would like to make a video that highlights the jobs/passions/hobbies from the community.

Find how to participate

HD FOCUS: NEWS ACROSS THE GLOBE

A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.

Visit HD Focus

HD BLOG

HD is a complex disease, and even with a lot of information available today, we believe that something is missing: personal stories. Feelings, advice, choices, ideas, indecision, mechanisms, and thoughts all need a space to be shared. Therefore, HD Blog was created to provide such a place. The community is essential because it helps us understand that we are not alone in our struggles as others feel the same way we do.

Read HD Blog

HDYO INTERNATIONAL CONGRESS IS BACK!

This in-person event, happening from 14-16 of March in Czech Republic, is designed by young people impacted by Huntington’s disease for young people impacted by Huntington’s disease.

Find more information

Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

Set up your local association

If you want to start your own association to support HD, we can help you understand how

Help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

Volunteer in IHA

Set up your local association

Help us make a difference

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