Tribute to a Great Man – Gerrit Dommerholt
It is with great sadness we announce the passing of one of our founders. Gerrit Dommerholt passed away in the Netherlands on the 31st December. Gerrit’s contribution to HD can hardly be overstated. He helped establish the association in the 1980s to foster closer collaboration with researchers and break the taboo surrounding HD. He helped create numerous national associations and motivated them to work for the good of HD families worldwide. He helped us understand the importance of family involvement in the fight against this condition.
HD families everywhere owe a massive dept of gratitude to Gerrit. On their behalf, thank you Gerrit. May you rest in peace.
Svein Olaf Olsen
President IHA
Bea de Schepper
International Development Officer
Huntington’s Disease (HD) is a hereditary, neurodegenerative illness that affects people from all over the world
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The International Huntington´s Association (IHA) is a non-profit umbrella organization, made up of local associations all over the world. Established in 1974 by Margaret Guthrie, it now represents more than 250,000 individuals and member associations in South and North America, China, Australia, India, Middle East and Africa.
Our Mission is to improve the lives of individuals and families who are affected by Huntington’s Disease.
Raise awareness of Huntington’s Disease
Enable national associations so that they can provide support for local HD families
Encourage cross border networks and exchange of know-how
Promote active involvement in clinical research
Advocate for treatment access
The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and support services in Asia. In Read more…
IHA has partnered with the Huntington Disease Youth Organisation and European Huntington Association to create a global Community Advisory Board, named HD-CAB. HD-CAB is made up of representatives from HD families around the globe. Members Read more…
Seven members of the PTC Therapeutics team joined 11 HD-CAB team members for an advisory board on the 3rd November. Sian O’Neill, Senior Director of Patient Engagement EMEA & AP wrote following the meeting to Read more…
International Huntington Association Vognsneset 30, 4643 Søgne, Norway
svein@iha-huntington.org
