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INTERNATIONAL HUNTINGTON ASSOCIATION
For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.
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MAY AWARENESS MONTH 2026
The European Huntington Association (EHA) and the International Huntington Association (IHA) are joining forces again, launching a joint global campaign this May to mark Huntington’s Disease Awareness Month, under the theme “More Than HD – Be Part of It.”
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HD FOCUS: NEWS ACROSS THE GLOBE
A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.
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BE EMPOWERED BY TANITA ALLEN
The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.
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Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

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Set up your local association

If you want to start your own association to support HD, we can help you understand how

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Help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

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Recent News
News

Roche/Genentech Discontinuing Trials

Today Roche shared difficult news. After careful review of the data, they have decided to stop two of their Huntington’s disease studies: GENERATION HD2 and POINT-HD. We’ve provided

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July 9, 2026

Upcoming Events

HDYO's North American HD Young Person Camp

  • Camp St. Charlest, Maryland, USA
  • Aug 10-14 2026

MENA Congress for Rare Diseases

  • Abu Dhabi, UAE
  • Sep 03-05 2026

EHDN 2026

  • Kraków, Poland
  • Oct 22-24 2026

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