Tribute to a Great Man – Gerrit Dommerholt

It is with great sadness we announce the passing of one of our founders.  Gerrit Dommerholt passed away in the Netherlands on the 31st December.  Gerrit’s contribution to HD can hardly be overstated.  He helped establish the association in the 1980s to foster closer collaboration with researchers and break the taboo surrounding HD.   He helped create numerous national associations and motivated them to work for the good of HD families worldwide.  He helped us understand the importance of family involvement in the fight against this condition. 

HD families everywhere owe a massive dept of gratitude to Gerrit.  On their behalf, thank you Gerrit.  May you rest in peace.   


Svein Olaf Olsen 

President IHA


Bea de Schepper

International Development Officer

About Huntington's Disease

Huntington’s Disease (HD) is a hereditary, neurodegenerative illness that affects people from all over the world

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The International Huntington´s Association (IHA) is a non-profit umbrella organization, made up of local associations all over the world. Established in 1974 by Margaret Guthrie, it now represents more than 250,000 individuals and member associations in South and North America, China, Australia, India, Middle East and Africa.

Our Mission

Our Mission is to improve the lives of individuals and families who are affected by Huntington’s Disease.

Our Objectives

Raise awareness of Huntington’s Disease

Enable national associations so that they can provide support for local HD families

Encourage cross border networks and exchange of know-how

Promote active involvement in clinical research

Advocate for treatment access


Update in Pakistani testing

The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and support services in Asia. In Read more…

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