IHA is currently looking for an Arabic speaking person to translate a few contents in our website. if you are interested, please contact us at


Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

Want to set up your local association?

If you want to start your own association to support HD, we can help you understand how

You can help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

The International Huntington´s Association (IHA) is a non-profit umbrella organization, made up of local associations all over the world. Established in 1974 by Margaret Guthrie, it now represents more than 250,000 individuals and member associations in South and North America, China, Australia, India, Middle East and Africa.

Our Mission

Our Mission is to improve the lives of individuals and families who are affected globally by Huntington’s Disease.

Our Objectives

1. Raise awareness of Huntington’s Disease

2. Enable national associations so that they can provide support for local HD families

3. Encourage cross border networks and exchange of know-how

4. Promote active involvement in clinical research

5. Advocate for treatment access

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Recent News


Novartis ends the VIBRANT-HD study

Novartis shared today the difficult news that they are stopping the VIBRANT-HD study of Branaplam, after some participants devoloping side effects. Read the full Novartis letter Even if this news can be disappointing, the HD

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