International Huntington Association

A Global Effort to Help People With Huntington's Disease

A non-profit umbrella organization established in 1974 by Marjorie Guthrie. It now represents more than 250 000 individuals and member associations all over the world

Know more about HD

INTERNATIONAL HUNTINGTON ASSOCIATION

A Global Effort to Help People With Huntington's Disease

A non-profit umbrella organization established in 1974 by Marjorie Guthrie. It now represents more than 250 000 individuals and member associations all over the world

Know more about HD

Volunteer in IHA

If you want to help the Huntington's Disease community, we are looking for people willing to join forces and create something together

Find More

Want to set up your local association?

If you want to start your own association to support HD, we can help you understand how

Learn How

You can help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

Donate

Recent News

News

18 August 2023

Ashley Clarke, HD Advocate, shares her experience in uniQure headquarters

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB),...

News

17 August 2023

Rise Against Huntington’s: how two young high school students raised $2000 for Huntington's Disease

Jasmine and Sai are high school students from the US. They’re two young people who are determined to make a difference and inspire others to follow suit. A...

News

20 July 2023

National Huntington's Disease Day is officially established in Brazil

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing...

News

14 July 2023

Dimitri Poffé (Explore for Huntington) has his adventure shown in a new documentary

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all...

News

28 June 2023

MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held...

News

22 June 2023

PTC Therapeutics Shares Positive Interim Data from PIVOT-HD Clinical Trial in Huntington's Disease Patients

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile...

News

21 June 2023

uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and...

News

15 June 2023

National Huntington's Disease Day in Portugal

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação...

News

04 May 2023

It's May Awareness Month!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the...

News

25 April 2023

PRILENIA ANNOUNCE RESULTS FROM THE PROOF-HD STUDY: PROMISING, BUT MIXED RESULTS!

Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant...

Upcoming Events

European Huntington Association Conference

Blankenberge, Belgium

Oct 19-22 2023

MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024

Dubai, UAE

Feb 1-4 2024

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