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INTERNATIONAL HUNTINGTON ASSOCIATION
For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.
See what we've been doing
MAY AWARENESS MONTH 2025 – SHINING A LIGHT ON HD
Every May, communities around the world come together to shine a light on Huntington’s Disease (HD). This year, we’re launching a special May Awareness Month Calendar — 31 days of small actions, reflections, and learning opportunities that anyone can take part in.
See the calendar
HD FOCUS: NEWS ACROSS THE GLOBE
A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.
Visit HD Focus
BE EMPOWERED BY TANITA ALLEN
The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.
Read the column
HDYO INTERNATIONAL CONGRESS IS BACK!
This in-person event, happening from 14-16 of March in Czech Republic, is designed by young people impacted by Huntington’s disease for young people impacted by Huntington’s disease.
Find more information

Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

Find More

Set up your local association

If you want to start your own association to support HD, we can help you understand how

Learn How

Help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

Donate

Recent News
News
27 June 2025
Huntington Academy, a new e-learning platform dedicated to HD, is now available
The European Huntington Association, with the support of a grant from the European Union, and in collaboration with the Ligue Huntington Francophone Belge, the Bulgarian...
Read More
Be Empowered by Tanita
16 June 2025
Practicing Mindfulness with HD: Learning to Be Here Now
Living with Huntington’s Disease has taught me many things, but one of the most important lessons has been this: presence is a practice. Before my diagnosis, I didn’t...
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News
05 May 2025
PTC518 PIVOT-HD Study Achieves Primary Endpoint
May 5, 2025 PDF Version – Study met primary endpoint with dose-dependent blood HTT protein lowering at Week 12 – – Favorable dose-dependent trends...
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News
30 April 2025
May Awareness Month 2025 - Shining a light on HD: One Action a Day
Every May, communities around the world come together to shine a light on Huntington’s Disease (HD). From families and caregivers to clinicians, researchers, and...
Read More
Be Empowered by Tanita
30 April 2025
5 Self-Care Tips That Help Me Thrive with Huntington’s Disease
May is Huntington’s Disease Awareness Month a time to uplift the voices of those impacted, challenge stigma, and spotlight the strength that lives within our community....
Read More
News
17 April 2025
UniQure Announces FDA Breakthrough Therapy Designation Granted to AMT-130 for the Treatment of Huntington’s Disease
~ Breakthrough Therapy designation based on clinical evidence from Phase I/II trials showing meaningful slowing of disease progression ~ ~ Additional regulatory...
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News
17 April 2025
Update on the Phase II GENERATION HD2 study
Roche has announced the continuation of the GENERATION HD2 Phase II clinical trial evaluating tominersen in individuals with early signs of Huntington’s disease....
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Be Empowered by Tanita
31 March 2025
You Are Not Powerless: Reclaiming Control While Living with Huntington’s Disease
Living with Huntington’s Disease (HD) often feels like a series of quiet, and sometimes loud goodbyes. We say goodbye to the way our bodies used to move, to...
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News
27 March 2025
A Look Back at the HDYO Congress 2025
The HDYO Congress 2025 brought together young people, families, researchers, and professionals from around the world for an unforgettable event dedicated to the...
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News
21 March 2025
March 23: Celebrating Gratitude Day in the Huntington’s Disease Community
“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease...
Read More

Upcoming Events

MENAcfrd2025
MENA Congress for Rare Diseases
Abu Dhabi, United Arab Emirates
Apr 17-20 2025
Design sem nome (48)
EHA Conference
Bucharest, Romania
Sep 25-28 2025
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