Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

Find more

Want to set up your local association?

If you want to start your own association to support HD, we can help you understand how

Learn how

You can help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

Donate

The International Huntington´s Association (IHA) is a non-profit umbrella organization, made up of local associations all over the world. Established in 1974 by Margaret Guthrie, it now represents more than 250,000 individuals and member associations in South and North America, China, Australia, India, Middle East and Africa.

Our Mission

Our Mission is to improve the lives of individuals and families who are affected globally by Huntington’s Disease.

Our Objectives

1. Raise awareness of Huntington’s Disease

2. Enable national associations so that they can provide support for local HD families

3. Encourage cross border networks and exchange of know-how

4. Promote active involvement in clinical research

5. Advocate for treatment access

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Upcoming Events

September 16-18 2022

EHDN 2022 Plenary Meeting

February 18-19 2023

MENA Organization for Rare Diseases Annual Meeting 2023

March 17-19 2023

HDYO Young Adults Congress

News

A Story of Hope

This is a story of hope. Sherry Lazaruk and her son, Trevor Strutt, are both diagnosed with Huntington’s Disease. Sherry was diagnosed when she turned 30 and Trevor was diagnosed 5 years ago. Trevor decided Read more…

Annexon Biosciences updates trial results

ANNEXON BIOSCIENCES REPORTS PHASE 2 CLINICAL TRIAL RESULTS DEMONSTRATING UPSTREAM CLASSICAL COMPLEMENT INHIBITION ASSOCIATED WITH CLINICAL BENEFIT IN HUNTINGTON’S DISEASE On June 7, Annexon, that is a clinical-stage biopharmaceutical company developing a new class of Read more…

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