05 May 2025
PTC518 PIVOT-HD Study Achieves Primary Endpoint
May 5, 2025 PDF Version – Study met primary endpoint with dose-dependent blood HTT protein lowering at Week 12 – – Favorable dose-dependent trends...
30 April 2025
May Awareness Month 2025 - Shining a light on HD: One Action a Day
Every May, communities around the world come together to shine a light on Huntington’s Disease (HD). From families and caregivers to clinicians, researchers, and...
30 April 2025
5 Self-Care Tips That Help Me Thrive with Huntington’s Disease
May is Huntington’s Disease Awareness Month a time to uplift the voices of those impacted, challenge stigma, and spotlight the strength that lives within our community....
17 April 2025
UniQure Announces FDA Breakthrough Therapy Designation Granted to AMT-130 for the Treatment of Huntington’s Disease
~ Breakthrough Therapy designation based on clinical evidence from Phase I/II trials showing meaningful slowing of disease progression ~ ~ Additional regulatory...
17 April 2025
Update on the Phase II GENERATION HD2 study
Roche has announced the continuation of the GENERATION HD2 Phase II clinical trial evaluating tominersen in individuals with early signs of Huntington’s disease....
31 March 2025
You Are Not Powerless: Reclaiming Control While Living with Huntington’s Disease
Living with Huntington’s Disease (HD) often feels like a series of quiet, and sometimes loud goodbyes. We say goodbye to the way our bodies used to move, to...
27 March 2025
A Look Back at the HDYO Congress 2025
The HDYO Congress 2025 brought together young people, families, researchers, and professionals from around the world for an unforgettable event dedicated to the...
21 March 2025
March 23: Celebrating Gratitude Day in the Huntington’s Disease Community
“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease...
06 March 2025
Be Empowered by Tanita Allen, the new IHA website column
Tanita Allen, a dedicated advocate for Huntington’s Disease and author of her much labored memoir “We Exist”, is starting a new column for the IHA website, called...
05 March 2025
Be Empowered by Tanita Allen: Finding Strength in Our Shared Journey
Hello, everyone! I am truly honored to introduce myself as the newest columnist for the International Huntington Association’s online platform. Writing for this...