International Huntington Association – A Global Effort to Help People with Huntington's Disease

INTERNATIONAL HUNTINGTON ASSOCIATION

For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.

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HD FOCUS: NEWS ACROSS THE GLOBE

A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.

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BE EMPOWERED BY TANITA ALLEN

The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.

Read the column

Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

Set up your local association

If you want to start your own association to support HD, we can help you understand how

Help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

Recent News

Be Empowered by Tanita

Still Here: Redefining a Meaningful Life With Huntington’s Disease

There is a question I’ve been asked in many forms since my diagnosis: How do you live a meaningful life with Huntington’s disease? Sometimes it’s asked gently, sometimes

February 11, 2026

News

Novartis Announces INVEST-HD

Novartis development of Votoplam in HD: INVEST-HD Phase 3 trial information now available February 3rd 2026 Dear Huntington’s disease Community, We are delighted to share an update on

February 10, 2026

News

Sarepta Therapeutics Announces Approval of Clinical Trial Application for SRP-1005, Its Investigational Treatment for Huntington’s Disease

The first-in-human clinical study of SRP-1005, known as INSIGHTT, is expected to begin in the second quarter of 2026 CAMBRIDGE, Mass.–(BUSINESS WIRE)–Feb. 4, 2026– Sarepta Therapeutics, Inc. (NASDAQ:SRPT),

Volunteer in IHA

Set up your local association

Help us make a difference

Recent News

Still Here: Redefining a Meaningful Life With Huntington’s Disease

Novartis Announces INVEST-HD

Sarepta Therapeutics Announces Approval of Clinical Trial Application for SRP-1005, Its Investigational Treatment for Huntington’s Disease

Upcoming Events

HDYO's North American HD Young Person Camp

MENA Congress for Rare Diseases

EHDN 2026

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