Rare Disease Day 2023 Campaign

Join our campaign for Rare Disease Day!

February 28th is Rare Disease Day, where the rare community comes together, finds support and raises awareness for rare diseases across the globe

This year we want you to join the #LightUpForRare campaign. To participate you just need to send us a photo with some coloured lights or candles (you don’t need to appear in the photo if you don’t like to).

Send the photo before February 27th to our mail: participate@eurohuntington.org

You can also post the photo on the 28th tagging us and EURORDIS – European Rare Diseases Organisation