It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only playing an important role in the HD community, but also in the Rare Diseases community.
“We are delighted to have been accepted as a full member of RDI. This means a lot to us and to be able to tell the world that we have reached this position in the year we celebrate our 50th anniversary, is fantastic”, states Svein Olaf Olsen, the President of the International Huntington Association.
The President adds: “This is hopefully the beginning of a long collaboration. Among other things, we want to be able to work together with RDI globally. We have, for a long time, wanted to become a partner for World Health Organization (WHO), and we will see if we can do something with RDI in that context.”