In her memoir “We Exist”, Tanita Allen tells of the difficulty she had in having her symptoms correctly diagnosed as Huntington’s Disease. Time and again, she was misdiagnosed because doctors refused to consider that African Americans could also inherit the mutated gene. In her memoir she embarks on a powerful exploration of her life with Huntington’s Disease and the physical and mental toll she paid as a results of delayed diagnosis. 

Tanita is now a dedicated advocate for Huntington’s Disease and is a featured author in Forbes magazine.  For more information about Tanita and her book, visit her website:

Categories: Stories

1 Comment

Vicki Owen · May 18, 2024 at 3:13 pm

Tanita is an an amazing warrior for Huntington’s Disease!

Leave a Reply

Avatar placeholder

Your email address will not be published. Required fields are marked *