Dimitri Poffé is an already known member of the HD Community. After testing positive for Huntington’s Disease, Dimitri embraced a bicycle journey through South America.
In this project, called Explore for Huntington, Dimitri visited several HD associations and families, trying to raise awareness for Huntington’s.
“The Present is directed by Timothy Dhalleine and produced by Cascada Expediciones, and you can watch it here:
Rare Diseases International (RDI), announced the launch of the RDI Youth Leadership Programme, an initiative designed to engage and empower young people within the rare disease community. This programme aims to ensure that the perspectives Read more…
Toronto student writes book so others will treat her grandpa kindly December 11, 2024 — Toronto, Ontario, Canada Most people have never heard of Huntington’s disease. This lack of awareness means people living with this Read more…
Yesterday, uniQure issued a press release announcing alignment with the US Food and Drug Administration (FDA) on key elements of an accelerated approval pathway for uniQure‘s AMT-130 program in Huntington’s disease. The key takeaways are Read more…
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1 Comment
Miguel · January 9, 2025 at 6:49 pm
me encanto la labor de Dimitri, me gusto el viaje, vivo en México y conozco el hospital del sur de la ciudad, me gustaria apoyar en esta sensibilización de la enfermedad. seguir a Dimitri