“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease gene in the 1980s, and that continues to these days through various efforts around the world to find treatments for the disease”
March 23rd marks a historic moment for the Huntington’s Disease (HD) community—the day the groundbreaking publication identifying the mutation that causes HD was first reported. This milestone was the result of two decades of research and the unwavering dedication of many families affected by HD. Among them, the thousands of Venezuelans who participated in studies played a crucial role in enabling scientists to achieve this breakthrough. From that moment, everything changed.
Today, thanks to that discovery, a number of clinical trials targeting the huntingtin gene show promise and offer new hope to families worldwide.
How to Get Involved in Gratitude Day
Join the HD community in celebrating this special day! Here’s how you can participate:
📸 Share Your Gratitude: Post a picture on social media using #HDGratitudeDay and express what you’re grateful for in your HD journey.
📺 Join the Livestream: Tune in on March 23 for a special live event from Venezuela, where families and researchers will come together to reflect on this milestone. [🔗 Watch the livestream here]
💜 Support HD Families: This year’s donations to Factor-H, an organization helping HD families in Latin America, will fund educational programs for youth, including workshops for teenagers and basic education for children. [🔗 Donate in the Factor-H website]
📝 Add to the Virtual Gratitude Wall: Visit IHA’s and EHA’s online Gratitude Wall and share what you’re grateful for. Whether through words, pictures, videos, or drawings, let’s create a space filled with appreciation and hope! [🔗 Join the Gratitude Wall here]
This Gratitude Day, let’s honor the past, celebrate the present, and work toward a future beyond Huntington’s disease. 🌿💜
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