The founding of The Arabic Huntington Association is a sign of a more connected HD community

We are so delighted to share that on 27 March 2026, a significant step forward was taken for the Huntington’s Disease (HD) community in the Arab region. Representatives from several Arab countries – Egypt, United Arab Emirates, Oman, Libya, Morocco and Algeria – reunited to formally establish a new regional non-profit organisation: The Arabic Huntington Association (AHA).

This founding meeting marked a milestone in strengthening collaboration and support for individuals and families affected by Huntington’s Disease across Arabic-speaking countries – where awareness, resources, and access to care is unfortunately still limited.

The creation of the AHA reflects a shared commitment to improving the quality of life for those impacted by HD. By bringing together voices from across the region, the Association aims to foster a more coordinated and inclusive approach to tackling the challenges posed by this complex neurodegenerative condition.

During the meeting, the founding Board of the Association was elected:

• Chairman: Svein Olaf Olsen (International Huntington Association, Norway)
• Board Member: Nadia el-Hajri (Oman)
• Board Member: Ahella el Naggar (Egypt)
• Ahmed Harazi (Saudi-Arabia)

Goals of the AHA

Established as an independent, non-political, and non-religious non-profit organisation, the Arabic Huntington Association is grounded in a clear and ambitious mission: to improve the lives of individuals and families affected by Huntington’s disease throughout the Arab region.

To achieve this, the AHA will focus on several key priorities:

• Support individuals and families affected by Huntington’s disease across the Arab region;
• Promote awareness, education, and early diagnosis;
• Facilitate cooperation between medical professionals, researchers, and patient communities;
• Strengthen regional and collaboration between the Arabic speaking countries;
• Advocate for improved care, treatment access, and social support.

The establishment of the AHA represents more than just the creation of an organisation, it marks the beginning of a stronger, more connected HD community in the Arab world.

By uniting efforts across borders and disciplines, the Association has the potential to drive meaningful change, amplify underrepresented voices, and ensure that no one facing Huntington’s disease in the region feels alone.

Soon the website will be presented. Stay tuned as we keep sharing more news on this.