International Huntington Association – A Global Effort to Help People with Huntington's Disease

INTERNATIONAL HUNTINGTON ASSOCIATION

For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.

See what we've been doing

MAY AWARENESS MONTH 2026

The European Huntington Association (EHA) and the International Huntington Association (IHA) are joining forces again, launching a joint global campaign this May to mark Huntington’s Disease Awareness Month, under the theme “More Than HD – Be Part of It.”

HD FOCUS: NEWS ACROSS THE GLOBE

A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.

Visit HD Focus

BE EMPOWERED BY TANITA ALLEN

The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.

Read the column

Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

Set up your local association

If you want to start your own association to support HD, we can help you understand how

Help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

Recent News

News

Skyhawk Therapeutics Announces Twelve-Month Interim Results from Phase 1/2 Clinical Trial of SKY-0515 in Huntington’s Disease

Twelve-month findings showed improvement in Composite Unified Huntington’s Disease Rating Scale (cUHDRS) scores from baseline of +0.38, compared to an expected decline of -0.92 points in propensity score-weighted

June 2, 2026

News

The Arabic Huntington Association is on!

We’re happy to share that the website of the Arabic Huntington Association is now live.This is another important step towards building a stronger and more connected HD community

May 21, 2026

HD Blog

The Shape of What’s Happening

When a blind person uses a cane, something strange happens in their brain. The neural map of their body (the internal model that tracks where they end and

Volunteer in IHA

Set up your local association

Help us make a difference

Recent News

Skyhawk Therapeutics Announces Twelve-Month Interim Results from Phase 1/2 Clinical Trial of SKY-0515 in Huntington’s Disease

The Arabic Huntington Association is on!

The Shape of What’s Happening

Upcoming Events

HDYO's North American HD Young Person Camp

MENA Congress for Rare Diseases

EHDN 2026

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