17 April 2025
UniQure Announces FDA Breakthrough Therapy Designation Granted to AMT-130 for the Treatment of Huntington’s Disease
~ Breakthrough Therapy designation based on clinical evidence from Phase I/II trials showing meaningful slowing of disease progression ~ ~ Additional regulatory...
17 April 2025
Update on the Phase II GENERATION HD2 study
Roche has announced the continuation of the GENERATION HD2 Phase II clinical trial evaluating tominersen in individuals with early signs of Huntington’s disease....
31 March 2025
You Are Not Powerless: Reclaiming Control While Living with Huntington’s Disease
Living with Huntington’s Disease (HD) often feels like a series of quiet, and sometimes loud goodbyes. We say goodbye to the way our bodies used to move, to...
27 March 2025
A Look Back at the HDYO Congress 2025
The HDYO Congress 2025 brought together young people, families, researchers, and professionals from around the world for an unforgettable event dedicated to the...
21 March 2025
March 23: Celebrating Gratitude Day in the Huntington’s Disease Community
“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease...
06 March 2025
Be Empowered by Tanita Allen, the new IHA website column
Tanita Allen, a dedicated advocate for Huntington’s Disease and author of her much labored memoir “We Exist”, is starting a new column for the IHA website, called...
13 February 2025
Growing Up with HD: Insights & Support Strategies with Siri Hagen Kjølaas
At last year’s EHDN & Enroll-HD Conference in Strasbourg, we had the privilege of interviewing Siri Hagen Kjølaas, Ph.D., to discuss her groundbreaking research...
06 February 2025
SOM Biotech announces Phase 2b study results
SOM Biotech presents the Phase 2b study results with SOM3355 demonstrating a unique profile with robust improvements of chorea in Huntington’s Disease Patients...
30 January 2025
Rare Disease Day 2025 Campaign
The International Huntington Association, in collaboration with the European Huntington Association, is organizing a campaign for Rare Disease Day 2025, on the 28th...
13 January 2025
RDI Launches Youth leadership programme
Rare Diseases International (RDI), announced the launch of the RDI Youth Leadership Programme, an initiative designed to engage and empower young people within the...