INTERNATIONAL HUNTINGTON ASSOCIATION
For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.
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HD FOCUS: NEWS ACROSS THE GLOBE
A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.
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BE EMPOWERED BY TANITA ALLEN
The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.
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If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

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If you want to start your own association to support HD, we can help you understand how

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Recent News

News

An Update from LoQus23

LoQus23 Therapeutics is a biotechnology company investigating small molecule drugs that could stop the pathogenic triplet expansion that is the cause and driver of Huntington’s Disease (HD), myotonic

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News

New Phase 1 POINT-HD Study

New Phase 1 POINT-HD study starts for selective huntingtin-lowering approach Dear Huntington’s community leaders, Following your request to receive updates about our research efforts, we are pleased to

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Be Empowered by Tanita

How to Advocate for Yourself in Medical Settings

One of the hardest parts of living with Huntington’s disease isn’t the symptoms themselves, it’s navigating the medical system. From rushed appointments to misunderstanding symptoms, to being doubted

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Upcoming Events

MENA Congress for Rare Diseases

EHDN 2026

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