Donate
INTERNATIONAL HUNTINGTON ASSOCIATION
For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.
See what we've been doing
HD FOCUS: NEWS ACROSS THE GLOBE
A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.
Visit HD Focus
BE EMPOWERED BY TANITA ALLEN
The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.
Read the column

Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

Find More

Set up your local association

If you want to start your own association to support HD, we can help you understand how

Learn How

Help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

Donate

Recent News
HD Blog

Care Home Communication

This document outlines key areas to share with your loved one’s care home staff. Please note, the information below is based on personal struggles/challenges with care homes experienced

Read More
March 5, 2026
News

uniQure Provides Regulatory Update

Dear Huntington’s Disease Community, We are writing to share an update following our recent Type A meeting with the U.S. Food and Drug Administration (FDA.) On March 2,

Read More
March 2, 2026

Upcoming Events

HDYO's North American HD Young Person Camp

  • Camp St. Charlest, Maryland, USA
  • Aug 10-14 2026

MENA Congress for Rare Diseases

  • Abu Dhabi, UAE
  • Apr 09-11 2026

EHDN 2026

  • Kraków, Poland
  • Oct 22-24 2026
logo

Subscribe to our newsletter