International Huntington Association – A Global Effort to Help People with Huntington's Disease

INTERNATIONAL HUNTINGTON ASSOCIATION

For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.

See what we've been doing

MAY AWARENESS MONTH 2025 – SHINING A LIGHT ON HD

Every May, communities around the world come together to shine a light on Huntington’s Disease (HD). This year, we’re launching a special May Awareness Month Calendar — 31 days of small actions, reflections, and learning opportunities that anyone can take part in.

See the calendar

HD FOCUS: NEWS ACROSS THE GLOBE

A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.

Visit HD Focus

BE EMPOWERED BY TANITA ALLEN

The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.

Read the column

HDYO INTERNATIONAL CONGRESS IS BACK!

This in-person event, happening from 14-16 of March in Czech Republic, is designed by young people impacted by Huntington’s disease for young people impacted by Huntington’s disease.

Find more information

Volunteer in IHA

If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together

Set up your local association

If you want to start your own association to support HD, we can help you understand how

Help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

Volunteer in IHA

Set up your local association

Help us make a difference

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