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INTERNATIONAL HUNTINGTON ASSOCIATION
For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.
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HD FOCUS: NEWS ACROSS THE GLOBE
A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.
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BE EMPOWERED BY TANITA ALLEN
The new IHA website column written by Tanita Allen, a dedicated advocate for Huntington’s Disease, where she hopes to bring a message of empowerment, independently from your HD connection. A space for honest conversations, encouragement, and actionable steps toward living a fulfilling life despite the challenges people in the HD Community face.
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Recent News
Be Empowered by Tanita
03 December 2025
How to Advocate for Yourself in Medical Settings
One of the hardest parts of living with Huntington’s disease isn’t the symptoms themselves, it’s navigating the medical system. From rushed appointments to misunderstanding...
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News
19 November 2025
Summary of "EHDN Platform Meeting on uniQure topline results: Unpacking the outcomes so far"
Warsaw, November 19th, 2025. Dear members, As you might know, yesterday the European Huntington’s Disease Network (EHDN) developed a seminar about the topline results...
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Be Empowered by Tanita
06 November 2025
Finding Gratitude in a Body That Feels Unpredictable
There are mornings when I wake up and my body feels like a stranger. Some days, the movements are gentle, barely a whisper under the surface. Other days, they arrive...
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News
03 November 2025
uniQure Provides Regulatory Update on AMT-130 for Huntington’s Disease
November 3, 2025 Dear Huntington’s Disease Community, We issued a press release today announcing that uniQure received feedback from the U.S. Food and Drug Administration...
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News
14 October 2025
ADORE-DH - Potential Stem Cell Therapy
ADORE-DH was a Phase II trial of a potential stem cell therapy for HD. Sponsored by AZIDUS Brasil (a full-service clinical research organization), this randomized,...
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Be Empowered by Tanita
13 October 2025
How to Talk About HD Without Feeling Like a Burden
Before I speak about Huntington’s disease, there’s often a pause in my chest. It’s not just the facts I’m weighing it’s the fear of how they’ll land. Will the listener’s...
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News
24 September 2025
uniQure Announces Positive Topline Results from Pivotal Phase I/II Study of AMT-130 in Patients with Huntington’s Disease
September 24, 2025 PDF Version ~ Pivotal study met primary endpoint; high-dose AMT-130 demonstrated statistically significant 75% disease slowing at 36 months as...
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Be Empowered by Tanita
22 September 2025
10 Signs You’re Due for a Self-Care Reset
Some days, my body speaks before I’m ready to listen. My balance wobbles, my movements grow sharper, my speech feels slower to form. Living with Huntington’s disease...
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News
18 September 2025
Skyhawk Reports Data on Cohort C
Earlier today, Skyhawk provided the below update on Part C of their SKY-0515 Phase 1 trial. —-Community Letter—— Dear Skyhawk friends and colleagues,...
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Be Empowered by Tanita
05 August 2025
5 Rituals That Keep Me Sane With HD
1. Morning Grounding Ritual Purpose: Create a calm, intentional start to your day Before my feet touch the floor, I pause. I place my hand over my heart or my belly...
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Upcoming Events

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MENA Congress for Rare Diseases
Abu Dhabi, UAE
Apr 09-11-2026
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EHA Conference
Kraków, Poland
Oct 22-24 2026
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