SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical study with SOM3355 as a treatment for Huntington’s chorea has been completed. After a a Phase IIa study where the قراءة المزيد……
Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael Hayden, CEO of Prilenia “Pridopidine demonstrates consistent treatment benefits across independent measures that are important to patients and families. These قراءة المزيد……
Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease. They have discovered that two small molecules, called SPI-24 and SPI-77, can effectively reduce mutant huntingtin expression in the brain while leaving the normal gene قراءة المزيد……
It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only playing an important role in the HD community, but also in the Rare Diseases community. “We are delighted to have قراءة المزيد……
~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean CSF NfL continue to demonstrate favorable trends with low-dose patients below baseline at 30 months and high-dose patients near baseline قراءة المزيد……
Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an informative and occasionally overwhelming experience for me. Community, compassion, and empowerment – these terms roughly describe my memories of those قراءة المزيد……
The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not only benefits those affected by the disease but also raises the much-needed awareness about Huntington’s Disease. This article serves as قراءة المزيد……
As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient voice in the design and conduct of clinical trials. Following an HD-CAB advisory board meeting with uniQure in 2022 Ashley قراءة المزيد……
Jasmine and Sai are high school students from the US. They’re two young people who are determined to make a difference and inspire others to follow suit. A fundraising initiative they set up and managed recently raised an incredible $2000 for Huntington’s Disease. While initially planning to put value into قراءة المزيد……
After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the 27th of September as the National Huntington’s Disease Awareness Day. The creation of this day was officialized by the President قراءة المزيد……
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