Poland and Belgium spearhead efforts to help Ukrainian HD families 

If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De Schepper, vice president of the Belgian Huntington Liga (Flanders) have been leading efforts to help them.  As fighting broke out قراءة المزيد……

أخبار عاجلة – خطط روش لعمل دراسات جديدة على دواء تومينيرسين

Some encouraging news has just come in from Roche.  Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a subset of patients may benefit from Tominersen.  The analysis showed that less frequent dosing of Tominersen may benefit younger patients قراءة المزيد……

تكريم للرجل العظيم - جيريت دومرهولت

It is with great sadness we announce the passing of one of our founders.  Gerrit Dommerholt passed away in the Netherlands on the 31st December.  Gerrit’s contribution to HD can hardly be overstated.  He helped establish the association in the 1980s to foster closer collaboration with researchers and break the taboo قراءة المزيد……

September 2021 – A global HD Community Advisory Board has been established

IHA has partnered with the Huntington Disease Youth Organisation and European Huntington Association to create a global Community Advisory Board, named HD-CAB.    HD-CAB is made up of representatives from HD families around the globe.  Members from 20 different countries provide valuable input to researchers, industry representatives, regulators and policy makers قراءة المزيد……

25th June 2021 – The 1st Huntington’s Disease Meeting for the Arabic Countries

The first Huntington’s Disease Meeting for the Arabic Countries was attended by participants from 14 different countries.  Thanks for its success goes to the chair and keynote speaker Prof. Bernhard Landwehrmeyer along with a number of other high-profile presenters.  The original meeting was meant to be held live in Cairo قراءة المزيد……

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