التصنيف: الأخبار

تمكين المجتمعات: خلاصة المبادرات الأخيرة التي قامت بها جمعية هنتنغتون البرازيلية (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

تشاركنا آشلي كلارك، مدافعة عن حقوق الإنسان، تجربتها في مقر يونيكيور

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

حملة "انهض ضد هنتنغتون": كيف جمع طالبين شابين في المدرسة الثانوية $2000 من أجل مرض هنتنغتون

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]

الاحتفال رسميًا باليوم الوطني لمرض هنتنغتون في البرازيل

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the […]

ديميتري بوفيه (استكشف من أجل هنتنغتون) تُعرض مغامرته في فيلم وثائقي جديد

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to […]

المعرض والاجتماع السنوي لمنظمة الشرق الأوسط وشمال أفريقيا للأمراض النادرة 2024

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai […]

شركة PTC Therapeutics تشارك بيانات مؤقتة إيجابية من تجربة PIVOT-HD السريرية على مرضى هنتنغتون

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes –  – Conference […]

يونيكيور تعلن عن تحديث المرحلة الأولى/الثانية من التجربة السريرية الأمريكية للعلاج الجيني AMT-130 لعلاج مرض هنتنغتون

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history […]

اليوم الوطني لمرض هنتنغتون في البرتغال

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) […]

إنه شهر التوعية بشهر مايو!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by […]