It’s HD May Awareness Month and HDSI (Huntington’s Disease Society of India) is celebrating it with HD light-up, by lighting up buildings of proeminence in order to express solidarity with HD affected families and to bring awareness. Everyone can get قراءة المزيد……
If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De Schepper, vice president of the Belgian Huntington Liga (Flanders) have قراءة المزيد……
Yesterday, Prilenia hosted a webinar updating on the Phase III trial with Pridopidine. Thank you to everyone who join and a special thanks to our speakers, Michael Hayden, Andrew Feigin, Ralf Reilman and Anne Rosser and also to Dina de قراءة المزيد……
Welcome to HDYO’s International Young Adult Virtual Congress March 5-6, 2022! After the success of our first event, we’re hosting another virtual congress! Join us for two days of sensational speakers, personal stories, shared experiences and educational sessions and research قراءة المزيد……
From 18th February until the 20th, Dubai will host the first MENA (Middle East and North Africa) Conference for Rare Diseases, in which International Huntington Association is a Scientific Partner. This conference will cover a wide range of diseases in various subspecialities, قراءة المزيد……
HDYO will launch JOIN-HD, the Juvenile onset HD Global Registry, that will be open for Stage 1: Open Enrollment, starting February 4th. JOIN-HD is a global registry that collects experiences from both young people who have Juvenile HD and their قراءة المزيد……
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker works as a research physician and قراءة المزيد……
Some encouraging news has just come in from Roche. Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a subset of patients may benefit from Tominersen. The analysis showed قراءة المزيد……
It is with great sadness we announce the passing of one of our founders. Gerrit Dommerholt passed away in the Netherlands on the 31st December. Gerrit’s contribution to HD can hardly be overstated. He helped establish the association in the 1980s قراءة المزيد……
The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and support services in Asia. In conjunction with the Chinese Huntington قراءة المزيد……
Arabic 
English 
Portuguese 
Spanish