انضم إلى حملتنا ليوم الأمراض النادرة! يوم 28 فبراير هو يوم الأمراض النادرة، حيث يجتمع فيه مجتمع الأمراض النادرة ويجد الدعم والتوعية بالأمراض النادرة في جميع أنحاء العالم هذا العام نريدك أن تنضم إلى حملة #LightUpForRare. قراءة المزيد…...
يُجري سفين أولاف أولسن، رئيس جمعية هنتنغتون الدولية، مقابلة مع مايكي، وهي مثال للقوة والأمل، مع قصة مؤثرة.
Roche/ Genentech announce that Phase II GENERATION HD2 study is now open. This is great news for the international community since it is planned to run in 15 countries (Argentina, Austria, Australia, Canada, Denmark, France, Germany, Italy, New Zealand, Poland, قراءة المزيد…...
Novartis shared today the difficult news that they are stopping the VIBRANT-HD study of Branaplam, after some participants devoloping side effects. Read the full Novartis letter Even if this news can be disappointing, the HD Community will keep positive and قراءة المزيد…...
IHA interviews Robert Pacifici from CHDI IHA interviews Robert Pacifici from CHDI IHA interviews Robert Pacifici from CHDI IHA interviews Robert Pacifici from CHDI Svein Olaf Olsen, President of the International Huntington Association, interviews Robert Pacifici, the Chief Scientific Officer قراءة المزيد…...
International Huntington Association has received a very generous donation. A Norwegian donor is behind the donation. He wishes to remain anonymous. The money is earmarked for a new position at IHA’s office in Lisbon and is given under this condition. قراءة المزيد…...
Have you heard of the Joyvest by Lyckna? It’s an activity vest that plays music when you move! Carina, from the Huntington’s Disease Association (RHS) in Sweden makes a demonstration. This is a physical therapy, highly recomended for working and قراءة المزيد…...
A Message to the Huntington’s Disease Community from uniQure Dear Huntington’s Disease Community Members, This morning, uniQure issued a press release which included an update on our clinical trial ofAMT-130 (the name of the study drug) for Huntington’s Disease (HD.) قراءة المزيد…...
September 20, 2022 at 7:30 AM EDT PDF Version Single doses of WVE-003 appear generally safe and well-tolerated CSF mutant huntingtin (mHTT) protein was reduced following single doses of 30 or 60 mg; mean mHTT reduction across both cohorts was قراءة المزيد…...
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