Категория: Новини

Ашли Кларк, застъпник за HD, споделя опита си в централата на uniQure

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Издигане срещу болестта на Хънтингтън: как двама млади ученици от гимназията събраха $2000 за болестта на Хънтингтън

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]

В Бразилия официално е обявен Национален ден на болестта на Хънтингтън

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the […]

Димитри Пофе (Explore for Huntington) показва своето приключение в нов документален филм

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to […]

Годишна среща и изложба на Организацията за редки болести на Близкия изток и Северна Африка 2024

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai […]

PTC Therapeutics споделя положителни междинни данни от клиничното изпитване PIVOT-HD при пациенти с болестта на Хънтингтън

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes –  – Conference […]

uniQure обявява актуализация на американското клинично изпитване фаза I/II на генната терапия AMT-130 за лечение на болестта на Хънтингтън

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history […]

Национален ден на болестта на Хънтингтън в Португалия

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) […]

Това е месецът на осведомеността през май!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by […]

PRILENIA ОБЯВЯВА РЕЗУЛТАТИТЕ ОТ ПРОУЧВАНЕТО PROOF-HD: ОБЕЩАВАЩИ, НО СМЕСЕНИ РЕЗУЛТАТИ!

Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant benefits from the Pridopidine drug, while others did not benefit at all.  This […]