Ние съществуваме: Танита Алън разказва за борбата си да получи достъп до генетични изследвания в Съединените щати

In her memoir “We Exist”, Tanita Allen tells of the difficulty she had in having her symptoms correctly diagnosed as Huntington’s Disease. Time and again, she was misdiagnosed because doctors refused to consider that African Americans could also inherit the mutated Прочетете повече...

В Пакистан се финансира нова асоциация за болестта на Хънтингтън - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of organisations dedicated to improving the lives of those affected by Прочетете повече...

SOM Biotech завършва процеса на набиране на участници в проучване фаза IIb за лечение на хорея при болестта на Хънтингтън

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical study with SOM3355 as a treatment for Huntington’s chorea has Прочетете повече...

Prilenia планира да подаде заявление за разрешение за търговия в ЕС за придопидин при болестта на Хънтингтън

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael Hayden, CEO of Prilenia “Pridopidine demonstrates consistent treatment benefits across Прочетете повече...

Международната асоциация Хънтингтън вече е член на Международната асоциация за редки болести!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only playing an important role in the HD community, but also Прочетете повече...

uniQure обявява актуализация на фаза I/II на клиничните изпитвания на генната терапия AMT-130 за лечение на болестта на Хънтингтън

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean CSF NfL continue to demonstrate favorable trends with low-dose patients Прочетете повече...

HD Community Insights: Знание, съпричастност и насърчение - конференцията на EHA ме вдъхнови

Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an informative and occasionally overwhelming experience for me. Community, compassion, and Прочетете повече...

Овластяване на общностите: Преглед на последните инициативи на Бразилската асоциация на ловците (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not only benefits those affected by the disease but also raises Прочетете повече...

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