Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an informative and occasionally overwhelming experience for me. Community, compassion, and Прочетете повече...
The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not only benefits those affected by the disease but also raises Прочетете повече...
As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient voice in the design and conduct of clinical trials. Following Прочетете повече...
Jasmine and Sai are high school students from the US. They’re two young people who are determined to make a difference and inspire others to follow suit. A fundraising initiative they set up and managed recently raised an incredible $2000 Прочетете повече...
След като бе одобрен от Камарата на депутатите миналата година, законопроектът 5060/13 най-накрая бе публикуван в Официалния дневник на Съюза миналия месец, на 21 юни, с което 27 септември бе обявен за Национален ден за повишаване на осведомеността за болестта на Хънтингтън. Прочетете повече...
The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to raise awareness for Huntington’s Disease will now have his own Прочетете повече...
MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai from 1 to 4 February 2024. This conference will be Прочетете повече...
June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes – – Conference call and webcast to be held June 21st at 8:00 am EDT – SOUTH Прочетете повече...
~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history of the disease ~ ~ Neurofilament Light Chain (NfL) in Прочетете повече...
Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) Today that marks National Day of Huntington’s Disease, we want Прочетете повече...
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