How to Advocate for Yourself in Medical Settings

One of the hardest parts of living with Huntington’s disease isn’t the symptoms themselves, it’s navigating the medical system. From rushed appointments to misunderstanding symptoms, to being doubted or dismissed […]

How to Talk About HD Without Feeling Like a Burden

Before I speak about Huntington’s disease, there’s often a pause in my chest. It’s not just the facts I’m weighing it’s the fear of how they’ll land. Will the listener’s […]

10 Signs You’re Due for a Self-Care Reset

Some days, my body speaks before I’m ready to listen. My balance wobbles, my movements grow sharper, my speech feels slower to form. Living with Huntington’s disease means these aren’t […]

5 Rituals That Keep Me Sane With HD

1. Morning Grounding Ritual Purpose: Create a calm, intentional start to your day Before my feet touch the floor, I pause. I place my hand over my heart or my […]