Anxiety in public spaces: what people don’t see when they stare

There is a particular kind of anxiety that can rise up when you live with Huntington’s disease and step into a public space. It is not always loud. Sometimes it […]
Marching Forward: Spring Energy Without the Pressure: Living With Huntington’s Disease One Gentle Step at a Time

March has a reputation. It’s the month that whispers “new season” before the world is fully ready. The light changes. The air softens. People start talking about spring cleaning, fresh […]
Still Here: Redefining a Meaningful Life With Huntington’s Disease

There is a question I’ve been asked in many forms since my diagnosis: How do you live a meaningful life with Huntington’s disease? Sometimes it’s asked gently, sometimes with curiosity, […]
What My Diagnosis Taught Me About Slowing Down With Purpose

Before Huntington’s disease entered my life, I moved through the world at a pace that made sense for the life I thought I was building. I held onto the idea […]
How to Advocate for Yourself in Medical Settings

One of the hardest parts of living with Huntington’s disease isn’t the symptoms themselves, it’s navigating the medical system. From rushed appointments to misunderstanding symptoms, to being doubted or dismissed […]
Finding Gratitude in a Body That Feels Unpredictable

There are mornings when I wake up and my body feels like a stranger. Some days, the movements are gentle, barely a whisper under the surface. Other days, they arrive […]
How to Talk About HD Without Feeling Like a Burden

Before I speak about Huntington’s disease, there’s often a pause in my chest. It’s not just the facts I’m weighing it’s the fear of how they’ll land. Will the listener’s […]
10 Signs You’re Due for a Self-Care Reset

Some days, my body speaks before I’m ready to listen. My balance wobbles, my movements grow sharper, my speech feels slower to form. Living with Huntington’s disease means these aren’t […]
5 Rituals That Keep Me Sane With HD

1. Morning Grounding Ritual Purpose: Create a calm, intentional start to your day Before my feet touch the floor, I pause. I place my hand over my heart or my […]
The Label of ‘Warrior’: Do We Need It to Feel Strong?

“You’re such a warrior.” People say it with admiration, as if it’s a badge I should wear proudly. But what if I don’t always want to be a warrior? What […]