The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and support services in Asia. In conjunction with the Chinese Huntington Association and IHA vice president Xi Cao, the IHA is Read more…
IHA has partnered with the Huntington Disease Youth Organisation and European Huntington Association to create a global Community Advisory Board, named HD-CAB. HD-CAB is made up of representatives from HD families around the globe. Members from 20 different countries provide valuable input to researchers, industry representatives, regulators and policy makers Read more…
Seven members of the PTC Therapeutics team joined 11 HD-CAB team members for an advisory board on the 3rd November. Sian O’Neill, Senior Director of Patient Engagement EMEA & AP wrote following the meeting to say “Thank you again for the opportunity to participate in the 1st HD-CAB. It was a Read more…
The first Huntington’s Disease Meeting for the Arabic Countries was attended by participants from 14 different countries. Thanks for its success goes to the chair and keynote speaker Prof. Bernhard Landwehrmeyer along with a number of other high-profile presenters. The original meeting was meant to be held live in Cairo Read more…
English 
Portuguese 
Arabic 
Spanish