Kategori: Nyheder

Prilenia planlægger at indsende ansøgning om markedsføringstilladelse i EU for pridopidin til behandling af Huntingtons sygdom

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Gennembrud repræsenterer et nyt håb for HS-patienter

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

Den internationale Huntington-forening er nu medlem af Rare Diseases International!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure offentliggør opdatering om kliniske fase I/II-forsøg med AMT-130 genterapi til behandling af Huntingtons sygdom

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

Styrkelse af lokalsamfund: En opsummering af de seneste initiativer fra den brasilianske Huntington-forening (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

Ashley Clarke, HD Advocate, deler sin oplevelse i uniQures hovedkvarter

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Rise Against Huntington's: hvordan to unge gymnasieelever indsamlede $2000 til Huntingtons sygdom

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]

National dag for Huntingtons sygdom er officielt indført i Brasilien

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the […]

Dimitri Poffé (Explore for Huntington) får vist sit eventyr i en ny dokumentarfilm

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to […]

MENA-organisationen for sjældne sygdommes årsmøde og udstilling 2024

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai […]