Arkiver

Rise Against Huntington's: hvordan to unge gymnasieelever indsamlede $2000 til Huntingtons sygdom

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]

National dag for Huntingtons sygdom er officielt indført i Brasilien

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the […]

Dimitri Poffé (Explore for Huntington) får vist sit eventyr i en ny dokumentarfilm

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to […]

MENA-organisationen for sjældne sygdommes årsmøde og udstilling 2024

MENA Organization for Rare Diseases annoncerer det tredje årlige møde, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024, der vil blive afholdt i Beach Rotana, i Dubai fra [...].

MENA-organisationen for sjældne sygdommes årsmøde og udstilling 2024

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai […]

PTC Therapeutics offentliggør positive foreløbige data fra det kliniske forsøg med PIVOT-HD i patienter med Huntingtons sygdom

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes –  – Conference […]

uniQure offentliggør opdatering om klinisk fase I/II-studie i USA med AMT-130 genterapi til behandling af Huntingtons sygdom

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history […]

National dag for Huntingtons sygdom i Portugal

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) […]

Det er maj måned med opmærksomhed!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by […]

PRILENIA OFFENTLIGGØR RESULTATER FRA PROOF-HD-UNDERSØGELSEN: LOVENDE, MEN BLANDEDE RESULTATER!

Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant benefits from the Pridopidine drug, while others did not benefit at all.  This […]