Kategorie: Nachrichten

Phase-2-Studie von Sage Therapeutics untermauert kognitive Auswirkungen der Huntington-Krankheit

Earlier this week Sage Therapeutics announced the results of their SURVEYOR study which quantified the cognitive impact of Huntington’s Disease.  Using the HD-Cognitive Assessment Battery (HD-CAB) they measured the difference […]

Aktuelles aus dem Nahen Osten und Nordafrika

IHA President Svein Olaf Olsen was keynote speaker on Huntington’s Disease at the MENA Congress for Rare Diseases in Abu Dhabi last month. He spoke of the urgent need to […]

FDA erteilt uniQure die Bezeichnung "Regenerative Medicine Advance Therapy" (RMAT)

Today we are very happy in the Huntington community.  The announcement from Uniqure that the company has received the Regenerative Medicine Advanced Therapy (RMAT) “Designation for Investigational Gene Therapy AMT-130 […]

Kostenloses Online-Psychotherapieprogramm für Menschen mit HD

Doctors at the University of Reading (UK) have developed a free online psychotherapy programme for people with Huntington’s Disease.  It’s part of a research project that looks at how people […]

In Pakistan wird eine neue Vereinigung für die Huntington-Krankheit gegründet - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of […]

SOM Biotech schließt die Rekrutierung für die Phase-IIb-Studie zur Behandlung von Chorea bei Chorea Huntington ab

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

Prilenia plant Einreichung eines Antrags auf Marktzulassung in der EU für Pridopidin bei Chorea Huntington

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Durchbruch bedeutet neue Hoffnung für HD-Patienten

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

Die Internationale Huntington-Vereinigung ist jetzt Mitglied der Rare Diseases International!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure gibt Update zu den klinischen Phase I/II-Studien der Gentherapie AMT-130 zur Behandlung der Huntington-Krankheit bekannt

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]