Κατηγορία: Νέα

Αφιέρωμα σε έναν σπουδαίο άνθρωπο - Gerrit Dommerholt

It is with great sadness we announce the passing of one of our founders.  Gerrit Dommerholt passed away in the Netherlands on the 31st December.  Gerrit’s contribution to HD can hardly […]

Ενημέρωση στις πακιστανικές δοκιμές

The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and […]

Σεπτέμβριος 2021 - Δημιουργήθηκε ένα παγκόσμιο συμβουλευτικό συμβούλιο της κοινότητας HD

IHA has partnered with the Huntington Disease Youth Organisation and European Huntington Association to create a global Community Advisory Board, named HD-CAB.    HD-CAB is made up of representatives from HD […]

3 Νοεμβρίου 2021 - Πρώτη συμβουλευτική επιτροπή HD-CAB

Seven members of the PTC Therapeutics team joined 11 HD-CAB team members for an advisory board on the 3rd November.  Sian O’Neill, Senior Director of Patient Engagement EMEA & AP […]

25 Ιουνίου 2021 - Η 1η συνάντηση για τη νόσο του Huntington για τις αραβικές χώρες

The first Huntington’s Disease Meeting for the Arabic Countries was attended by participants from 14 different countries.  Thanks for its success goes to the chair and keynote speaker Prof. Bernhard […]