Sage Therapeutics Phase 2 Study Reinforces Cognitive Impact of Huntington’s Disease

Earlier this week Sage Therapeutics announced the results of their SURVEYOR study which quantified the cognitive impact of Huntington’s Disease.  Using the HD-Cognitive Assessment Battery (HD-CAB) they measured the difference between 29 healthy volunteers and 40 participants with HD.   As Διαβάστε περισσότερα...

Συντάκτης Daniela Carvalho, πριν από

Ο FDA χορηγεί στην uniQure τον χαρακτηρισμό Regenerative Medicine Advance Therapy (RMAT)

Today we are very happy in the Huntington community.  The announcement from Uniqure that the company has received the Regenerative Medicine Advanced Therapy (RMAT) “Designation for Investigational Gene Therapy AMT-130 in Huntington’s Disease is more than promising”, says President of Διαβάστε περισσότερα...

Υπάρχουμε: Tanita Allen αφηγείται τον αγώνα της να αποκτήσει πρόσβαση σε γενετικές εξετάσεις στις Ηνωμένες Πολιτείες

In her memoir “We Exist”, Tanita Allen tells of the difficulty she had in having her symptoms correctly diagnosed as Huntington’s Disease. Time and again, she was misdiagnosed because doctors refused to consider that African Americans could also inherit the mutated Διαβάστε περισσότερα...

Δωρεάν διαδικτυακό πρόγραμμα ψυχοθεραπείας για άτομα με HD

Doctors at the University of Reading (UK) have developed a free online psychotherapy programme for people with Huntington’s Disease.  It’s part of a research project that looks at how people with HD (symptomatic or pre-symptomatic) manage their daily lives.  More Διαβάστε περισσότερα...

Συντάκτης Daniela Carvalho, πριν από

Μια νέα ένωση για τη νόσο του Huntington χρηματοδοτείται στο Πακιστάν - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of organisations dedicated to improving the lives of those affected by Διαβάστε περισσότερα...

Συντάκτης Daniela Carvalho, πριν από

Η SOM Biotech ολοκληρώνει τη διαδικασία προσλήψεων στη μελέτη Φάσης ΙΙβ για τη θεραπεία της χορείας στη νόσο του Huntington

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical study with SOM3355 as a treatment for Huntington’s chorea has Διαβάστε περισσότερα...

Συντάκτης Daniela Carvalho, πριν από

Η Prilenia σχεδιάζει να υποβάλει αίτηση χορήγησης άδειας κυκλοφορίας στην ΕΕ για την πριδοπιδίνη στη νόσο του Huntington

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael Hayden, CEO of Prilenia “Pridopidine demonstrates consistent treatment benefits across Διαβάστε περισσότερα...

Συντάκτης Daniela Carvalho, πριν από

Η ανακάλυψη αποτελεί μια νέα ελπίδα για τους ασθενείς με HD

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two small molecules, called SPI-24 and SPI-77, can effectively reduce mutant Διαβάστε περισσότερα...

Η Διεθνής Ένωση Huntington είναι τώρα μέλος της Διεθνούς Ένωσης Σπάνιων Παθήσεων!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only playing an important role in the HD community, but also Διαβάστε περισσότερα...

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