Categoría: Novedades

La Asociación Internacional de Huntington es ahora miembro de la Rare Diseases International.

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure anuncia novedades sobre los ensayos clínicos de fase I/II de la terapia génica AMT-130 para el tratamiento de la enfermedad de Huntington

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

Empoderando Comunidades: Recapitulación de iniciativas recientes de la Asociación Brasileña de Huntington (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

Ashley Clarke, Defensora de la EH, comparte su experiencia en la sede de uniQure

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Levántate contra el Huntington: cómo dos jóvenes estudiantes de secundaria recaudaron $2000 para la enfermedad de Huntington

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]

Se establece oficialmente en Brasil el Día Nacional de la Enfermedad de Huntington

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the […]

Dimitri Poffé (Explore for Huntington) muestra su aventura en un nuevo documental

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to […]

Reunión y Exposición Anual 2024 de la Organización MENA de Enfermedades Raras

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai […]

PTC Therapeutics presenta datos provisionales positivos del ensayo clínico PIVOT-HD en pacientes con enfermedad de Huntington

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes –  – Conference […]

uniQure anuncia novedades sobre el ensayo clínico estadounidense de fase I/II de la terapia génica AMT-130 para el tratamiento de la enfermedad de Huntington

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history […]