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Información actualizada sobre Oriente Próximo y el Norte de África

IHA President Svein Olaf Olsen was keynote speaker on Huntington’s Disease at the MENA Congress for Rare Diseases in Abu Dhabi last month. He spoke of the urgent need to […]

La FDA concede a uniQure la designación de Terapia Avanzada de Medicina Regenerativa (RMAT)

Today we are very happy in the Huntington community.  The announcement from Uniqure that the company has received the Regenerative Medicine Advanced Therapy (RMAT) “Designation for Investigational Gene Therapy AMT-130 […]

Existimos: Tanita Allen relata su lucha por acceder a las pruebas genéticas en Estados Unidos

In her memoir “We Exist”, Tanita Allen tells of the difficulty she had in having her symptoms correctly diagnosed as Huntington’s Disease. Time and again, she was misdiagnosed because doctors refused […]

Programa gratuito de psicoterapia en línea para personas con EH

Médicos de la Universidad de Reading (Reino Unido) han desarrollado un programa gratuito de psicoterapia en línea para personas con enfermedad de Huntington. Forma parte de un proyecto de investigación que estudia cómo las personas [...]

Una nueva asociación para la enfermedad de Huntington se financia en Pakistán - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of […]

SOM Biotech completa el proceso de reclutamiento en el estudio de fase IIb del tratamiento de la corea en la enfermedad de Huntington

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

Prilenia planea presentar una solicitud de autorización de comercialización en la UE para la pridopidina en la enfermedad de Huntington

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Un gran avance representa una nueva esperanza para los pacientes con EH

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

La Asociación Internacional de Huntington es ahora miembro de la Rare Diseases International.

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure anuncia novedades sobre los ensayos clínicos de fase I/II de la terapia génica AMT-130 para el tratamiento de la enfermedad de Huntington

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]