Seminarios web educativos sobre trastornos neurológicos, neuromusculares y del movimiento poco frecuentes organizados conjuntamente por las Redes Europeas de Referencia para Enfermedades Neurológicas Raras (ERN-RND) y Enfermedades Neuromusculares (ERN-EuroNMD) y la Academia Europea de Neurología (EAN). El ponente trabaja como médico investigador y Leer más...
Some encouraging news has just come in from Roche. Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a subset of patients may benefit from Tominersen. The analysis showed Leer más...
It is with great sadness we announce the passing of one of our founders. Gerrit Dommerholt passed away in the Netherlands on the 31st December. Gerrit’s contribution to HD can hardly be overstated. He helped establish the association in the 1980s Leer más...
The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and support services in Asia. In conjunction with the Chinese Huntington Leer más...
IHA has partnered with the Huntington Disease Youth Organisation and European Huntington Association to create a global Community Advisory Board, named HD-CAB. HD-CAB is made up of representatives from HD families around the globe. Members from 20 different countries provide Leer más...
Seven members of the PTC Therapeutics team joined 11 HD-CAB team members for an advisory board on the 3rd November. Sian O’Neill, Senior Director of Patient Engagement EMEA & AP wrote following the meeting to say “Thank you again for Leer más...
The first Huntington’s Disease Meeting for the Arabic Countries was attended by participants from 14 different countries. Thanks for its success goes to the chair and keynote speaker Prof. Bernhard Landwehrmeyer along with a number of other high-profile presenters. The Leer más...
Arabic