Uudised

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient voice in the design and conduct of clinical trials.   Following Loe edasi...

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative they set up and managed recently raised an incredible $2000 Loe edasi...

Pärast seda, kui esindajatekoda oli eelmisel aastal selle heaks kiitnud, avaldati seaduseelnõu 5060/13 lõpuks eelmisel kuul, 21. juunil, liidu ametlikus päevikus, millega 27. september kehtestati riiklikuks Huntingtoni tõve teadlikkuse tõstmise päevaks. Loe edasi...

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to raise awareness for Huntington’s Disease will now have his own Loe edasi...

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai from 1 to 4 February 2024. This conference will be Loe edasi...

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes –  – Conference call and webcast to be held June 21st at 8:00 am EDT –  SOUTH Loe edasi...

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history of the disease ~ ~ Neurofilament Light Chain (NfL) in Loe edasi...

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) Today that marks National Day of Huntington’s Disease, we want Loe edasi...

On mai teadlikkuse kuu! Igal aastal ühineb ülemaailmne Huntingtoni tõve kogukond maikuus, et tõsta teadlikkust tuhandete Huntingtoni tõve all kannatavate inimeste jaoks. Sel aastal tahame tõsta Loe edasi...

Täna, 25. aprillil teatas Prilenia tulemused PROOF-HD kliinilisest uuringust Huntingtoni tõve puhul. Mõned osalejad näitasid Pridopidine'i ravimist olulist kasu, samas kui teised ei saanud sellest üldse kasu. See on paljutõotav, sest esimest korda on meil olemas Loe edasi...