Arhiiv

Pakistanis rahastatakse uut Huntingtoni tõve ühingut - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of […]

SOM Biotech lõpetab Huntingtoni tõve korea ravi IIb faasi uuringu värbamise protsessi

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

Prilenia plaanib esitada ELis müügiloa taotluse Pridopidiinile Huntingtoni tõve korral

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Läbimurre kujutab endast uut lootust HD-patsientide jaoks

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

Rahvusvaheline Huntingtoni Assotsiatsioon on nüüd Rahvusvahelise Haruldaste Haiguste Assotsiatsiooni (Rare Diseases International) liige!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure annab teada, et AMT-130 geeniteraapia I/II faasi kliinilised uuringud Huntingtoni tõve raviks on lõpule viidud.

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

HD Community Insights: EHA konverents inspireeris mind.

Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an […]

Kogukondade võimestamine: Brasiilia Huntingtoni Assotsiatsiooni (ABH) hiljutiste algatuste kokkuvõte.

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

EHDN täiskogu koosolek ja Enroll-HD kongress

EHDN ja Enroll-HD 2024 on koostööüritus, mis ühendab EHDNi täiskogu istungi ja Enroll-HD kongressi. Üritus toimub kolmel päeval ja pakub võimaluse [...]

Ashley Clarke, HD Advocate, jagab oma kogemusi uniQure'i peakorteris

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]