Learning by example: HD-JUNIOR a national registry for patients with juvenile onset Huntington’s Disease

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker works as a research physician and PhD-candidate at the Neurology and Human Genetics department of the Read more…

1st MENA Conference for Rare Diseases

Conrad Hotel, Dubai, UAE , United Arab Emirates

From 18th February until the 20th, Dubai will host the first MENA (Middle East and North Africa) Conference for Rare Diseases, in which International Huntington Association is a Scientific Partner.  This conference will cover a wide range of diseases in various subspecialities, such as neurology, cardiology, endocrine, metabolic, genetics, pediatrics, hematology, and oncology. Read more…

HDYO’s International Young Adults Virtual Congress

Welcome to HDYO's International Young Adult Virtual Congress March 5-6, 2022! After the success of our first event, we're hosting another virtual congress! Join us for two days of sensational speakers, personal stories, shared experiences and educational sessions and research updates from leading pharmaceutical companies and professionals. This event is open Read more…

Online Conversation – Explore for Huntington with Dimitri Poffé

Do you know Dimitri Poffé? Join us on Thursday 14 July at 19:00 h (CET) for a talk with him. This conversation will be held entirely in Spanish via Zoom, and you can register here: https://bit.ly/3byC7xQ Dimitri is a young French adventurer who is cycling across Latin America to raise awareness Read more…

EHDN 2022 Plenary Meeting

Palazzo dei Congressi Bologna Congressi S.r.l. Piazza della Costituzione, 4/a, Bologna, Italy

Topics presented during the EHDN2022 Plenary Meeting will contain reports on recent advances in HD research (in both basic and clinical sciences). Aside from participating in the plenary and other parallel sessions, attendees will also have the opportunity to meet experts in the field of HD studies in more informal Read more…

2022 Latin American Huntington’s Disease Conference

Barranquilla, Colombia Carrera 53, Calle 100-86, Barranquilla, Atlántico, Colombia

The 2022 Huntington’s Disease (HD) Latin American Conference brings together leading international representatives of the HD community – clinicians, scientists, social workers, students, family associations, affected individuals, and at-risk youth. Despite its international character, the conference is and will always be centered in Latin America, the launchpad for our current Read more…

MENA Organization for Rare Diseases Annual Meeting 2023

Mövenpick Grand Al Bustan Dubai, UAE Mövenpick Grand Al Bustan Dubai, UAE, Dubai, United Arab Emirates

MENA Organization for Rare Diseases Annual Meeting will take place in Dubai from 3 to 5 March 2023. During this meeting, experts will deliver the most updated knowledge in presentations and workshops related to rare diseases in various medical fields such as neurology, cardiology, pulmonary, nephrology, endocrine, hematology, oncology, genetics, Read more…

HDYO Young Adults Congress

Glasgow, Scotland Glasgow, Scotland, United Kingdom

After moving completely virtual, HDYO is excited to host their first ever in person conference for young adults, families and professionals impacted by Huntington's disease. They are finalizing details, but check out the latest at hdyocongress.org.

38th Annual HDSA Convention

Sheraton New Orleans Hotel Sheraton New Orleans 500 Canal Street, New Orleans, LA, LA, United States

HDSA Annual Convention is the largest gathering of HD families anywhere in the world. Over the last thirty-seven years, whether in-person, virtual, or hybrid, HDSA has prioritized bringing families together with world-class researchers and care professionals to learn about new developments in the HD landscape and have the unique opportunity Read more…

European Huntington Association Conference

Corsendonk Duinse Polders, A. Ruzettelaan 195, 8370 Blankenberge (Belgium) Corsendonk Duinse Polders, A. Ruzettelaan 195, Blankenberge, Belgium

The European Huntington Association is very happy to invite you to to join the HD community at the upcoming conference in Blankenberge, Belgium from 20-22nd of October.  The conference is open to everyone who lives with HD in their family or is interested in HD as a health care professional, friend, Read more…

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