Catégorie : Nouvelles

Mise à jour du Moyen-Orient et de l'Afrique du Nord

IHA President Svein Olaf Olsen was keynote speaker on Huntington’s Disease at the MENA Congress for Rare Diseases in Abu Dhabi last month. He spoke of the urgent need to […]

La FDA accorde à uniQure le statut de Regenerative Medicine Advance Therapy (RMAT)

Today we are very happy in the Huntington community.  The announcement from Uniqure that the company has received the Regenerative Medicine Advanced Therapy (RMAT) “Designation for Investigational Gene Therapy AMT-130 […]

Programme gratuit de psychothérapie en ligne pour les personnes atteintes de la maladie de Huntington

Doctors at the University of Reading (UK) have developed a free online psychotherapy programme for people with Huntington’s Disease.  It’s part of a research project that looks at how people […]

Une nouvelle association pour la maladie de Huntington est financée au Pakistan - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of […]

SOM Biotech achève le processus de recrutement de l'étude de phase IIb sur le traitement de la chorée dans la maladie de Huntington

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

Prilenia prévoit de déposer une demande d'autorisation de mise sur le marché dans l'UE pour la pridopidine dans la maladie de Huntington

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Une avancée qui représente un nouvel espoir pour les patients atteints de la maladie de Huntington

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

L'Association internationale Huntington est désormais membre de l'Internationale des maladies rares !

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure annonce une mise à jour des essais cliniques de phase I/II de la thérapie génique AMT-130 pour le traitement de la maladie de Huntington

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

Renforcer les communautés : Récapitulation des initiatives récentes de l'Association brésilienne de Huntington (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]