Kategori: Berita

Ashley Clarke, Advokat HD, berbagi pengalamannya di kantor pusat uniQure

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Bangkit Melawan Huntington: bagaimana dua siswa sekolah menengah pertama menggalang dana $2000 untuk Penyakit Huntington

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]

Hari Penyakit Huntington Nasional secara resmi ditetapkan di Brasil

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the […]

Dimitri Poffé (Jelajahi Huntington) menampilkan petualangannya dalam sebuah film dokumenter baru

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to […]

Pertemuan & Pameran Tahunan Organisasi MENA untuk Penyakit Langka 2024

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai […]

PTC Therapeutics Membagikan Data Sementara yang Positif dari Uji Klinis PIVOT-HD pada Pasien Penyakit Huntington

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes –  – Conference […]

uniQure Mengumumkan Perkembangan Uji Klinis Tahap I/II Terapi Gen AMT-130 di AS untuk Pengobatan Penyakit Huntington

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history […]

Hari Penyakit Huntington Nasional di Portugal

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) […]

Ini adalah Bulan Kesadaran Mei!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by […]

PRILENIA MENGUMUMKAN HASIL DARI STUDI PROOF-HD: HASIL YANG MENJANJIKAN, NAMUN BERAGAM!

Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant benefits from the Pridopidine drug, while others did not benefit at all.  This […]