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Untuk mengakhiri Bulan Kesadaran Mei dengan cara yang paling menginspirasi dan penuh harapan, Asosiasi Huntington Internasional dan Asosiasi Huntington Eropa mengadakan webinar dengan Dimitri Poffé, seorang advokat Penyakit Huntington yang menggerakkan komunitas sambil berkeliling Amerika Selatan Baca lebih lanjut...

Ini adalah Bulan Kesadaran HD Mei dan HDSI (Huntington's Disease Society of India) merayakannya dengan lampu HD, dengan menerangi gedung-gedung terkemuka untuk mengekspresikan solidaritas terhadap keluarga yang terkena dampak HD dan untuk meningkatkan kesadaran. Semua orang bisa mendapatkan Baca lebih lanjut...

If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De Schepper, vice president of the Belgian Huntington Liga (Flanders) have Baca lebih lanjut...

Yesterday, Prilenia hosted a webinar updating on the Phase III trial with Pridopidine. Thank you to everyone who join and a special thanks to our speakers, Michael Hayden, Andrew Feigin, Ralf Reilman and Anne Rosser and also to Dina de Baca lebih lanjut...

HDYO will launch JOIN-HD, the Juvenile onset HD Global Registry, that will be open for Stage 1: Open Enrollment, starting February 4th.  JOIN-HD is a global registry that collects experiences from both young people who have Juvenile HD and their Baca lebih lanjut...

Some encouraging news has just come in from Roche.  Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a subset of patients may benefit from Tominersen.  The analysis showed Baca lebih lanjut...

It is with great sadness we announce the passing of one of our founders.  Gerrit Dommerholt passed away in the Netherlands on the 31st December.  Gerrit’s contribution to HD can hardly be overstated.  He helped establish the association in the 1980s Baca lebih lanjut...

The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and support services in Asia. In conjunction with the Chinese Huntington Baca lebih lanjut...

IHA has partnered with the Huntington Disease Youth Organisation and European Huntington Association to create a global Community Advisory Board, named HD-CAB.    HD-CAB is made up of representatives from HD families around the globe.  Members from 20 different countries provide Baca lebih lanjut...

Seven members of the PTC Therapeutics team joined 11 HD-CAB team members for an advisory board on the 3rd November.  Sian O’Neill, Senior Director of Patient Engagement EMEA & AP wrote following the meeting to say “Thank you again for Baca lebih lanjut...