5月の意識向上月間まとめ
5月 31, 2022
May Awareness Month 2022 came to an end. Between the webinars, weekends away and Light It Up For HD, there were a lot of initiatives coming from all the different
ニュース
ウェビナー - ハンチントンのための探検。ラテンアメリカにおけるディミトリ・ポッフェの冒険
5月 30, 2022
To finish May Awareness Month in the most inspiring and hopeful way possible, the International Huntington Association and European Huntington Association had a webinar with Dimitri Poffé, a Huntington’s Disease
ハンチントン病のためのライトアップ2022
5月 13, 2022
It’s HD May Awareness Month and HDSI (Huntington’s Disease Society of India) is celebrating it with HD light-up, by lighting up buildings of proeminence in order to express solidarity with
ポーランドとベルギーが、ウクライナのHD家族を支援する取り組みを開始
5月 9, 2022
If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De
ウェビナー - Proof-HDについて知っておくべきこと
5月 5, 2022
Yesterday, Prilenia hosted a webinar updating on the Phase III trial with Pridopidine. Thank you to everyone who join and a special thanks to our speakers, Michael Hayden, Andrew Feigin,
若年性発症HDのグローバルレジストリ「JOIN-HD」を開設します
2月 8, 2022
HDYO will launch JOIN-HD, the Juvenile onset HD Global Registry, that will be open for Stage 1: Open Enrollment, starting February 4th. JOIN-HD is a global registry that collects experiences
速報】ロシュ社、トミンセンの新たな臨床試験を計画
1月 18, 2022
Some encouraging news has just come in from Roche. Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a
偉大な人物に捧ぐ - Gerrit Dommerholt（ゲリット・ドマーホルト
1月 17, 2022
It is with great sadness we announce the passing of one of our founders. Gerrit Dommerholt passed away in the Netherlands on the 31st December. Gerrit’s contribution to HD can hardly
パキスタン・テストのアップデート
1月 13, 2022
The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and
2021年9月 グローバルHDコミュニティアドバイザリーボードを設立
12月 7, 2021
IHA has partnered with the Huntington Disease Youth Organisation and European Huntington Association to create a global Community Advisory Board, named HD-CAB. HD-CAB is made up of representatives from HD
アネクソン・バイオサイエンスが試験結果をアップデート
6月 21, 2022
ANNEXON BIOSCIENCES REPORTS PHASE 2 CLINICAL TRIAL RESULTS DEMONSTRATING UPSTREAM CLASSICAL COMPLEMENT INHIBITION ASSOCIATED WITH CLINICAL BENEFIT IN HUNTINGTON’S DISEASE On June 7, Annexon, that is a clinical-stage biopharmaceutical company
5月の意識向上月間まとめ
5月 31, 2022
May Awareness Month 2022 came to an end. Between the webinars, weekends away and Light It Up For HD, there were a lot of initiatives coming from all the different
ウェビナー - ハンチントンのための探検。ラテンアメリカにおけるディミトリ・ポッフェの冒険
5月 30, 2022
To finish May Awareness Month in the most inspiring and hopeful way possible, the International Huntington Association and European Huntington Association had a webinar with Dimitri Poffé, a Huntington’s Disease
ハンチントン病のためのライトアップ2022
5月 13, 2022
It’s HD May Awareness Month and HDSI (Huntington’s Disease Society of India) is celebrating it with HD light-up, by lighting up buildings of proeminence in order to express solidarity with
ポーランドとベルギーが、ウクライナのHD家族を支援する取り組みを開始
5月 9, 2022
If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De
ウェビナー - Proof-HDについて知っておくべきこと
5月 5, 2022
Yesterday, Prilenia hosted a webinar updating on the Phase III trial with Pridopidine. Thank you to everyone who join and a special thanks to our speakers, Michael Hayden, Andrew Feigin,
若年性発症HDのグローバルレジストリ「JOIN-HD」を開設します
2月 8, 2022
HDYO will launch JOIN-HD, the Juvenile onset HD Global Registry, that will be open for Stage 1: Open Enrollment, starting February 4th. JOIN-HD is a global registry that collects experiences
速報】ロシュ社、トミンセンの新たな臨床試験を計画
1月 18, 2022
Some encouraging news has just come in from Roche. Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a
偉大な人物に捧ぐ - Gerrit Dommerholt（ゲリット・ドマーホルト
1月 17, 2022
It is with great sadness we announce the passing of one of our founders. Gerrit Dommerholt passed away in the Netherlands on the 31st December. Gerrit’s contribution to HD can hardly
パキスタン・テストのアップデート
1月 13, 2022
The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and
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