Kategorija: Naujienos

Naujausia informacija iš Artimųjų Rytų ir Šiaurės Afrikos

IHA President Svein Olaf Olsen was keynote speaker on Huntington’s Disease at the MENA Congress for Rare Diseases in Abu Dhabi last month. He spoke of the urgent need to […]

FDA suteikia "uniQure" regeneracinės medicinos pažangiosios terapijos (RMAT) vardą

Today we are very happy in the Huntington community.  The announcement from Uniqure that the company has received the Regenerative Medicine Advanced Therapy (RMAT) “Designation for Investigational Gene Therapy AMT-130 […]

Nemokama internetinė psichoterapijos programa HD sergantiems žmonėms

Doctors at the University of Reading (UK) have developed a free online psychotherapy programme for people with Huntington’s Disease.  It’s part of a research project that looks at how people […]

Pakistane finansuojama nauja Huntingtono ligos asociacija - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of […]

"SOM Biotech" baigia atranką į IIb fazės tyrimą dėl Hantingtono ligos chorea gydymo

"SOM Biotech", klinikinės stadijos vaistų atradimo ir kūrimo bendrovė, kurios veikla grindžiama unikalia patentuota dirbtinio intelekto platforma (SOMAIPRO®), džiaugiasi galėdama pranešti, kad į IIb fazės klinikinę [...]

"Prilenia" planuoja pateikti paraišką dėl leidimo prekiauti pridopidinu Huntingtono ligos gydymui ES

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Proveržis - nauja viltis HD pacientams

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

Tarptautinė Huntingtono asociacija tapo Tarptautinės retųjų ligų asociacijos nare!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

"uniQure" praneša apie atnaujintus I/II fazės klinikinius AMT-130 genų terapijos, skirtos Huntingtono ligai gydyti, tyrimus

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

Bendruomenių įgalinimas: Brazilijos Huntingtono asociacijos (ABH) naujausių iniciatyvų apžvalga

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]