Kategorija: Naujienos

"Novartis" baigia VIBRANT-HD tyrimą

Novartis shared today the difficult news that they are stopping the VIBRANT-HD study of Branaplam, after some participants devoloping side effects. Read the full Novartis letter Even if this news […]

Tarptautinė Huntingtono asociacija gauna labai dosnią auką

International Huntington Association has received a very generous donation. A Norwegian donor is behind the donation. He wishes to remain anonymous. The money is earmarked for a new position at […]

"uniQure" paskelbė, kad atnaujina pacientų registraciją didesnės dozės tyrime AMT-130

A Message to the Huntington’s Disease Community from uniQure Dear Huntington’s Disease Community Members, This morning, uniQure issued a press release which included an update on our clinical trial ofAMT-130 […]

"Wave Life Sciences" skelbia teigiamus 1b/2a fazės SELECT-HD tyrimo rezultatus, kurie rodo, kad WVE-003 su Huntingtono liga yra selektyvus alelio taikinys

September 20, 2022 at 7:30 AM EDT PDF Version Single doses of WVE-003 appear generally safe and well-tolerated CSF mutant huntingtin (mHTT) protein was reduced following single doses of 30 […]

"uniQure" praneša apie atnaujintus duomenis apie mažų dozių kohortą I/II fazės klinikiniame AMT-130 genų terapijos, skirtos Huntingtono ligai gydyti, tyrime

~ Treatment generally well-tolerated with no significant safety issues related to AMT-130 in treated patients through one year of follow-up ~ ~ A mean reduction of 53.8% of mutant HTT […]

"Annexon Biosciences" atnaujina tyrimų rezultatus

ANNEXON BIOSCIENCES REPORTS PHASE 2 CLINICAL TRIAL RESULTS DEMONSTRATING UPSTREAM CLASSICAL COMPLEMENT INHIBITION ASSOCIATED WITH CLINICAL BENEFIT IN HUNTINGTON’S DISEASE On June 7, Annexon, that is a clinical-stage biopharmaceutical company […]

Gegužės sąmoningumo mėnesio apibendrinimas

May Awareness Month 2022 came to an end. Between the webinars, weekends away and Light It Up For HD, there were a lot of initiatives coming from all the different […]

Internetinis seminaras - "Explore for Huntington: Dimitri Poffé nuotykiai Lotynų Amerikoje

To finish May Awareness Month in the most inspiring and hopeful way possible, the International Huntington Association and European Huntington Association had a webinar with Dimitri Poffé, a Huntington’s Disease […]

Šviesa Huntingtono ligai 2022 m.

It’s HD May Awareness Month and HDSI (Huntington’s Disease Society of India) is celebrating it with HD light-up, by lighting up buildings of proeminence in order to express solidarity with […]

Lenkija ir Belgija vadovauja pastangoms padėti Ukrainos HD šeimoms 

If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De […]