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UniQure Announces FDA Breakthrough Therapy Designation Granted to AMT-130 for the Treatment of Huntington’s Disease

~ Breakthrough Therapy designation based on clinical evidence from Phase I/II trials showing meaningful slowing of disease progression ~ ~ Additional regulatory update and guidance on the Biologics License Application […]

Update on the Phase II GENERATION HD2 study

Roche has announced the continuation of the GENERATION HD2 Phase II clinical trial evaluating tominersen in individuals with early signs of Huntington’s disease. Following an interim analysis by an independent committee, no […]

EHA Conference 2025

We are excited to announce that the European Huntington Association will be organising its 5th Biannual Conference in Bucharest, Romania, from September 25th-28th, 2025. “Shaping our Future Together, We are the Change!” encapsulates the spirit […]

Jūs nesate bejėgis: Susigrąžinti kontrolę gyvenant su Huntingtono liga.

Living with Huntington’s Disease (HD) often feels like a series of quiet, and sometimes loud goodbyes. We say goodbye to the way our bodies used to move, to the stamina […]

Žvilgsnis į 2025 m. HDYO kongresą

The HDYO Congress 2025 brought together young people, families, researchers, and professionals from around the world for an unforgettable event dedicated to the Huntington’s Disease community. Over three inspiring days, […]

Kovo 23 d.: dėkingumo dienos minėjimas Huntingtono ligos bendruomenėje

“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease gene in the 1980s, […]

Tanita Allen, naujoji IHA svetainės rubrika "Būkite įgalinti" (Be Empowered by Tanita Allen)

Tanita Allen, a dedicated advocate for Huntington’s Disease and author of her much labored memoir “We Exist”, is starting a new column for the IHA website, called Be Empowered by […]

Be Empowered by Tanita Allen: Allen Allen: "Ieškoti stiprybės mūsų bendroje kelionėje

Hello, everyone! I am truly honored to introduce myself as the newest columnist for the International Huntington Association’s online platform. Writing for this community is not only a privilege, but […]

Augant su HD: įžvalgos ir paramos strategijos su Siri Hagen Kjølaas

Praėjusiais metais Strasbūre vykusioje EHDN ir Enroll-HD konferencijoje turėjome garbės kalbėtis su daktare Siri Hagen Kjølaas ir aptarti jos novatoriškus tyrimus apie psichosocialinius iššūkius, su kuriais susiduria [...]

"SOM Biotech" paskelbė 2b fazės tyrimo rezultatus

SOM Biotech presents the Phase 2b study results with SOM3355 demonstrating a unique profile with robust improvements of chorea in Huntington’s Disease Patients and a safe profile with no somnolence, […]