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Internetinis seminaras - "Explore for Huntington: Dimitri Poffé nuotykiai Lotynų Amerikoje

To finish May Awareness Month in the most inspiring and hopeful way possible, the International Huntington Association and European Huntington Association had a webinar with Dimitri Poffé, a Huntington’s Disease […]

Šviesa Huntingtono ligai 2022 m.

It’s HD May Awareness Month and HDSI (Huntington’s Disease Society of India) is celebrating it with HD light-up, by lighting up buildings of proeminence in order to express solidarity with […]

Lenkija ir Belgija vadovauja pastangoms padėti Ukrainos HD šeimoms 

If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De […]

Internetinis seminaras - viskas, ką reikia žinoti apie "Proof-HD

Yesterday, Prilenia hosted a webinar updating on the Phase III trial with Pridopidine. Thank you to everyone who join and a special thanks to our speakers, Michael Hayden, Andrew Feigin, […]

1-oji MENA retųjų ligų konferencija

Vasario 18-20 d. Dubajuje vyks pirmoji MENA (Artimųjų Rytų ir Šiaurės Afrikos) retųjų ligų konferencija, kurios mokslinis partneris yra Tarptautinė Huntingtono asociacija. Ši [...]

HDYO pradės kurti JOIN-HD, pasaulinį nepilnamečių HD registrą

HDYO will launch JOIN-HD, the Juvenile onset HD Global Registry, that will be open for Stage 1: Open Enrollment, starting February 4th.  JOIN-HD is a global registry that collects experiences […]

HDYO tarptautinis virtualus jaunų suaugusiųjų kongresas

Welcome to HDYO’s International Young Adult Virtual Congress March 5-6, 2022! After the success of our first event, we’re hosting another virtual congress! Join us for two days of sensational […]

Mokymasis iš pavyzdžio: HD-JUNIOR - nacionalinis pacientų, sergančių jaunatvine Huntingtono liga, registras

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of […]

Naujausios žinios - "Roche" planuoja naują tominerseno tyrimą

Some encouraging news has just come in from Roche.  Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a […]

Duoklė puikiam žmogui - Gerritas Dommerholtas

It is with great sadness we announce the passing of one of our founders.  Gerrit Dommerholt passed away in the Netherlands on the 31st December.  Gerrit’s contribution to HD can hardly […]