Kategorija: Ziņas

Iespēju piešķiršana kopienām: Brazīlijas Huntingtona asociācijas (ABH) jaunāko iniciatīvu kopsavilkums.

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

Ashley Clarke, HD advokāte, dalās savā pieredzē uniQure galvenajā birojā

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Cīņa pret Hantingtona slimību: kā divi jauni vidusskolēni savākuši $2000 Hantingtona slimībai

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]

Brazīlijā oficiāli tiek atzīmēta Nacionālā Hantingtona slimības diena

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the […]

Dimitri Poffé (Explore for Huntington) piedzīvojumu stāsta jaunā dokumentālajā filmā

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to […]

MENA Reto slimību organizācijas ikgadējā sanāksme un izstāde 2024

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai […]

PTC Therapeutics dalās ar pozitīviem starpposma datiem no PIVOT-HD klīniskā pētījuma Hantingtona slimības pacientiem

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes –  – Conference […]

uniQure paziņo jaunāko informāciju par ASV I/II fāzes klīnisko izmēģinājumu ar AMT-130 gēnu terapiju Hantingtona slimības ārstēšanai

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history […]

Nacionālā Hantingtona slimības diena Portugālē

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) […]

Maijs ir informētības mēnesis!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by […]