Kategorija: Stāsti

Augot ar HD: Ieskats un atbalsta stratēģijas ar Siri Hagen Kjølaas

At last year’s EHDN & Enroll-HD Conference in Strasbourg, we had the privilege of interviewing Siri Hagen Kjølaas, Ph.D., to discuss her groundbreaking research on the psychosocial challenges faced by […]

"Dzīvespriecīga dzīve" - jauna grāmata, kurā atspoguļoti HD skarto cilvēku stāsti no visas pasaules.

PRESS RELEASE – October 25, 2024, Moscow, Idaho, USAWe are pleased to announce the launch of a new book about Huntington’s disease (HD) called, Livable Lives: Conversations with the Huntington’s […]

Neatlaidīga meklējumu hronika: Fonda izveide: neatlaidīga vēsture.

I belong to the third generation of a family affected by Huntington’s Disease, but it wasn’t until 2024, thanks to the tireless efforts of my second father, F. Cook, that […]

Mēs eksistējam: Tanita Allen stāsta par savu cīņu, lai iegūtu piekļuvi ģenētiskajiem testiem Amerikas Savienotajās Valstīs.

In her memoir “We Exist”, Tanita Allen tells of the difficulty she had in having her symptoms correctly diagnosed as Huntington’s Disease. Time and again, she was misdiagnosed because doctors refused […]

HD Community Insights: Zināšanas, empātija un iedrošinājums - EHA konference mani iedvesmoja

Gandrīz tieši 18 mēnešus pēc tam, kad man tika diagnosticēta Hantingtona slimība, es devos uz Eiropas Hantingtona konferenci Beļģijā. Dienas Blankenbergā kļuva par [...]