Archives

It’s May Awareness Month!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by […]

PRILENIA ANNOUNCE RESULTS FROM THE PROOF-HD STUDY: PROMISING, BUT MIXED RESULTS!

Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant benefits from the Pridopidine drug, while others did not benefit at all.  This […]

38th Annual HDSA Convention

HDSA Annual Convention is the largest gathering of HD families anywhere in the world. Over the last thirty-seven years, whether in-person, virtual, or hybrid, HDSA has prioritized bringing families together […]

European Huntington Association Conference

The European Huntington Association is very happy to invite you to to join the HD community at the upcoming conference in Blankenberge, Belgium from 20-22nd of October.  The conference is […]

HSG and HD-CAB Collaborate to Provide Global Patient Advisory Board

Rochester, NY — March 30, 2023 — The Huntington Study Group (HSG) together with its wholly owned subsidiary, HSG Clinical Research, Inc., a world leader in conducting clinical trials for Huntington’s […]

Prilenia Achieves Last Patient Last Visit in Phase 3 PROOF-HD Clinical Study for Huntington’s Disease

PROOF-HD is the only late-stage study in Huntington’s disease targeting clinical progression; topline results expected in early Q2 2023 NAARDEN, Netherlands and WALTHAM, Mass., 28 March 2023 – Prilenia Therapeutics B.V., a […]

Huntington’s Gratitude Day 2023

Dear friend,On March 23rd, 1993, scientists announced the discovery of the gene that causes Huntington’s Disease (HD). The announcement, after decades of research, made evident the partnership of ‘families living […]

MENA Organization for Rare Diseases and the International Huntington Association join forces in a unique collaboration!

In a key breakthrough, the MENA Organization for Rare Diseases and the International Huntington Association signed a memorandum of understanding during the MENA Organization for Rare Diseases annual meeting 2023, […]

Webinar: Novartis Discusses the VIBRANT-HD Trial

Rare Disease Community Comes Together to Release Book for Rare Disease Day, February 28

Huntington’s Disease has been steeped in secrecy and fear for generations, leaving people in the community without a voice. This book changes that. Huntington’s Disease Heroes features twenty-six people from […]