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uniQure Announces Positive Topline Results from Pivotal Phase I/II Study of AMT-130 in Patients with Huntington’s Disease

September 24, 2025 PDF Version ~ Pivotal study met primary endpoint; high-dose AMT-130 demonstrated statistically significant 75% disease slowing at 36 months as measured by cUHDRS compared to a propensity […]

10 Signs You’re Due for a Self-Care Reset

Some days, my body speaks before I’m ready to listen. My balance wobbles, my movements grow sharper, my speech feels slower to form. Living with Huntington’s disease means these aren’t […]

Skyhawk Reports Data on Cohort C

Earlier today, Skyhawk provided the below update on Part C of their SKY-0515 Phase 1 trial. —-Community Letter—— Dear Skyhawk friends and colleagues, We are delighted to today announce the […]

5 Rituals That Keep Me Sane With HD

1. Morning Grounding Ritual Purpose: Create a calm, intentional start to your day Before my feet touch the floor, I pause. I place my hand over my heart or my […]

Prilenia and Ferrer Provide Update on European Regulatory Process for Pridopidine in Huntington’s Disease

July 25, 2025 NAARDEN, Netherlands & WALTHAM, Mass. & BARCELONA, Spain–(BUSINESS WIRE)– Prilenia Therapeutics B.V. and Ferrer today announced that the European Medicines Agency’s (EMA) Committee for Medicinal Products for […]

The Label of ‘Warrior’: Do We Need It to Feel Strong?

“You’re such a warrior.” People say it with admiration, as if it’s a badge I should wear proudly. But what if I don’t always want to be a warrior? What […]

Huntington Academy, a new e-learning platform dedicated to HD, is now available

The European Huntington Association, with the support of a grant from the European Union, and in collaboration with the Ligue Huntington Francophone Belge, the Bulgarian Huntington Association and the ACHE […]

Practicing Mindfulness with HD: Learning to Be Here Now

Living with Huntington’s Disease has taught me many things, but one of the most important lessons has been this: presence is a practice. Before my diagnosis, I didn’t give much […]

PTC518 PIVOT-HD Study Achieves Primary Endpoint

May 5, 2025 PDF Version – Study met primary endpoint with dose-dependent blood HTT protein lowering at Week 12 – – Favorable dose-dependent trends across clinical scales in Stage 2 […]

May Awareness Month 2025 – Shining a light on HD: One Action a Day

Every May, communities around the world come together to shine a light on Huntington’s Disease (HD). From families and caregivers to clinicians, researchers, and advocates, we are united by one […]