If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De Schepper, vice president of the Belgian Huntington Liga (Flanders) have Read more…
Yesterday, Prilenia hosted a webinar updating on the Phase III trial with Pridopidine. Thank you to everyone who join and a special thanks to our speakers, Michael Hayden, Andrew Feigin, Ralf Reilman and Anne Rosser and also to Dina de Read more…
From 18th February until the 20th, Dubai will host the first MENA (Middle East and North Africa) Conference for Rare Diseases, in which International Huntington Association is a Scientific Partner. This conference will cover a wide range of diseases in various subspecialities, Read more…
HDYO will launch JOIN-HD, the Juvenile onset HD Global Registry, that will be open for Stage 1: Open Enrollment, starting February 4th. JOIN-HD is a global registry that collects experiences from both young people who have Juvenile HD and their Read more…
Welcome to HDYO’s International Young Adult Virtual Congress March 5-6, 2022! After the success of our first event, we’re hosting another virtual congress! Join us for two days of sensational speakers, personal stories, shared experiences and educational sessions and research Read more…
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker works as a research physician and Read more…
Some encouraging news has just come in from Roche. Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a subset of patients may benefit from Tominersen. The analysis showed Read more…
It is with great sadness we announce the passing of one of our founders. Gerrit Dommerholt passed away in the Netherlands on the 31st December. Gerrit’s contribution to HD can hardly be overstated. He helped establish the association in the 1980s Read more…
The International Huntington Association is committed to helping families impacted by Huntington’s disease around the world. As such, one of our current ongoing collaborations focuses on developing patient organizations and support services in Asia. In conjunction with the Chinese Huntington Read more…
IHA has partnered with the Huntington Disease Youth Organisation and European Huntington Association to create a global Community Advisory Board, named HD-CAB. HD-CAB is made up of representatives from HD families around the globe. Members from 20 different countries provide Read more…
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