Living with Huntington’s disease means living with uncertainty. I do not always know how my body will move, how much energy I will have, or how clearly my mind will
Date of release: 07/07/2026 Dear HD Community, We would like to share an update on the confirmatory PRECISE-HD study (Pridopidine Phase 3 Study to Establish Clinical Impact and Safety in
Today Roche shared difficult news. After careful review of the data, they have decided to stop two of their Huntington’s disease studies: GENERATION HD2 and POINT-HD. We’ve provided an overview
There is a certain kind of silence that can grow around a diagnosis like Huntington’s disease. It is not always the silence of acceptance or privacy. Sometimes it is the
3-year analysis from the Phase I/II study can serve as the primary basis of a Biologics License Application for accelerated approval with FDA ~ Company intends to submit the BLA
Twelve-month findings showed improvement in Composite Unified Huntington’s Disease Rating Scale (cUHDRS) scores from baseline of +0.38, compared to an expected decline of -0.92 points in propensity score-weighted natural history
We’re happy to share that the website of the Arabic Huntington Association is now live.This is another important step towards building a stronger and more connected HD community across the
When a blind person uses a cane, something strange happens in their brain. The neural map of their body (the internal model that tracks where they end and the world
A global awareness and engagement campaign for Huntington’s Disease launches this May The European Huntington Association (EHA) and the International Huntington Association (IHA) are joining forces again, launching a joint
We have received an interesting update from the pharmaceutical company Novartis about the medicine they currently are testing for Huntington’s Disease. Do you remember the study named PIVOT-HD done a
Living with Huntington’s disease means living with uncertainty. I do not always know how my body will move, how much energy I will have, or how clearly my mind will
Date of release: 07/07/2026 Dear HD Community, We would like to share an update on the confirmatory PRECISE-HD study (Pridopidine Phase 3 Study to Establish Clinical Impact and Safety in
Today Roche shared difficult news. After careful review of the data, they have decided to stop two of their Huntington’s disease studies: GENERATION HD2 and POINT-HD. We’ve provided an overview
There is a certain kind of silence that can grow around a diagnosis like Huntington’s disease. It is not always the silence of acceptance or privacy. Sometimes it is the
3-year analysis from the Phase I/II study can serve as the primary basis of a Biologics License Application for accelerated approval with FDA ~ Company intends to submit the BLA
Twelve-month findings showed improvement in Composite Unified Huntington’s Disease Rating Scale (cUHDRS) scores from baseline of +0.38, compared to an expected decline of -0.92 points in propensity score-weighted natural history
We’re happy to share that the website of the Arabic Huntington Association is now live.This is another important step towards building a stronger and more connected HD community across the
When a blind person uses a cane, something strange happens in their brain. The neural map of their body (the internal model that tracks where they end and the world
A global awareness and engagement campaign for Huntington’s Disease launches this May The European Huntington Association (EHA) and the International Huntington Association (IHA) are joining forces again, launching a joint
We have received an interesting update from the pharmaceutical company Novartis about the medicine they currently are testing for Huntington’s Disease. Do you remember the study named PIVOT-HD done a
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