The Shape of What’s Happening
May 11, 2026
When a blind person uses a cane, something strange happens in their brain. The neural map of their body (the internal model that tracks where they end and the world
News
May Awareness 2026: More than HD – Be Part of It.
April 30, 2026
A global awareness and engagement campaign for Huntington’s Disease launches this May The European Huntington Association (EHA) and the International Huntington Association (IHA) are joining forces again, launching a joint
Novartis shares encouraging news on a treatment for Huntington’s Disease
April 29, 2026
We have received an interesting update from the pharmaceutical company Novartis about the medicine they currently are testing for Huntington’s Disease. Do you remember the study named PIVOT-HD done a
The founding of The Arabic Huntington Association is a sign of a more connected HD community
April 28, 2026
We are so delighted to share that on 27 March 2026, a significant step forward was taken for the Huntington’s Disease (HD) community in the Arab region. Representatives from several
Our Team is growing! Welcome our new team members
April 23, 2026
The International Huntington Association (IHA) is pleased to announce that our team is growing. We are delighted to welcome Isabel Vermelho, Jarelys Lopez, and Simen Kindervaag, who bring valuable expertise
Anxiety in public spaces: what people don’t see when they stare
April 13, 2026
There is a particular kind of anxiety that can rise up when you live with Huntington’s disease and step into a public space. It is not always loud. Sometimes it
One Test, Many Consequences
March 18, 2026
Why Genetic Testing for Huntington’s Disease May Be Meaningful for Some People A decision no one takes lightly The question of undergoing a genetic test for Huntington’s disease is not
Marching Forward: Spring Energy Without the Pressure: Living With Huntington’s Disease One Gentle Step at a Time
March 13, 2026
March has a reputation. It’s the month that whispers “new season” before the world is fully ready. The light changes. The air softens. People start talking about spring cleaning, fresh
Care Home Communication
March 5, 2026
This document outlines key areas to share with your loved one’s care home staff. Please note, the information below is based on personal struggles/challenges with care homes experienced by my
uniQure Provides Regulatory Update
March 2, 2026
Dear Huntington’s Disease Community, We are writing to share an update following our recent Type A meeting with the U.S. Food and Drug Administration (FDA.) On March 2, 2026, uniQure
The Shape of What’s Happening
May 11, 2026
When a blind person uses a cane, something strange happens in their brain. The neural map of their body (the internal model that tracks where they end and the world
May Awareness 2026: More than HD – Be Part of It.
April 30, 2026
A global awareness and engagement campaign for Huntington’s Disease launches this May The European Huntington Association (EHA) and the International Huntington Association (IHA) are joining forces again, launching a joint
Novartis shares encouraging news on a treatment for Huntington’s Disease
April 29, 2026
We have received an interesting update from the pharmaceutical company Novartis about the medicine they currently are testing for Huntington’s Disease. Do you remember the study named PIVOT-HD done a
The founding of The Arabic Huntington Association is a sign of a more connected HD community
April 28, 2026
We are so delighted to share that on 27 March 2026, a significant step forward was taken for the Huntington’s Disease (HD) community in the Arab region. Representatives from several
Our Team is growing! Welcome our new team members
April 23, 2026
The International Huntington Association (IHA) is pleased to announce that our team is growing. We are delighted to welcome Isabel Vermelho, Jarelys Lopez, and Simen Kindervaag, who bring valuable expertise
Anxiety in public spaces: what people don’t see when they stare
April 13, 2026
There is a particular kind of anxiety that can rise up when you live with Huntington’s disease and step into a public space. It is not always loud. Sometimes it
One Test, Many Consequences
March 18, 2026
Why Genetic Testing for Huntington’s Disease May Be Meaningful for Some People A decision no one takes lightly The question of undergoing a genetic test for Huntington’s disease is not
Marching Forward: Spring Energy Without the Pressure: Living With Huntington’s Disease One Gentle Step at a Time
March 13, 2026
March has a reputation. It’s the month that whispers “new season” before the world is fully ready. The light changes. The air softens. People start talking about spring cleaning, fresh
Care Home Communication
March 5, 2026
This document outlines key areas to share with your loved one’s care home staff. Please note, the information below is based on personal struggles/challenges with care homes experienced by my
uniQure Provides Regulatory Update
March 2, 2026
Dear Huntington’s Disease Community, We are writing to share an update following our recent Type A meeting with the U.S. Food and Drug Administration (FDA.) On March 2, 2026, uniQure
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