We are so delighted to share that on 27 March 2026, a significant step forward was taken for the Huntington’s Disease (HD) community in the Arab region. Representatives from several
The International Huntington Association (IHA) is pleased to announce that our team is growing. We are delighted to welcome Isabel Vermelho, Jarelys Lopez, and Simen Kindervaag, who bring valuable expertise
There is a particular kind of anxiety that can rise up when you live with Huntington’s disease and step into a public space. It is not always loud. Sometimes it
Why Genetic Testing for Huntington’s Disease May Be Meaningful for Some People A decision no one takes lightly The question of undergoing a genetic test for Huntington’s disease is not
March has a reputation. It’s the month that whispers “new season” before the world is fully ready. The light changes. The air softens. People start talking about spring cleaning, fresh
This document outlines key areas to share with your loved one’s care home staff. Please note, the information below is based on personal struggles/challenges with care homes experienced by my
Dear Huntington’s Disease Community, We are writing to share an update following our recent Type A meeting with the U.S. Food and Drug Administration (FDA.) On March 2, 2026, uniQure
Harness Therapeutics Nominates HRN001, a First-in-Class Drug Candidate for Huntington’s Disease and Establishes Clinical Advisory Board Cambridge, UK, 16 February 2026: Harness Therapeutics (‘Harness’), a biotechnology company unlocking previously undruggable
There is a question I’ve been asked in many forms since my diagnosis: How do you live a meaningful life with Huntington’s disease? Sometimes it’s asked gently, sometimes with curiosity,
Novartis development of Votoplam in HD: INVEST-HD Phase 3 trial information now available February 3rd 2026 Dear Huntington’s disease Community, We are delighted to share an update on the development
We are so delighted to share that on 27 March 2026, a significant step forward was taken for the Huntington’s Disease (HD) community in the Arab region. Representatives from several
The International Huntington Association (IHA) is pleased to announce that our team is growing. We are delighted to welcome Isabel Vermelho, Jarelys Lopez, and Simen Kindervaag, who bring valuable expertise
There is a particular kind of anxiety that can rise up when you live with Huntington’s disease and step into a public space. It is not always loud. Sometimes it
Why Genetic Testing for Huntington’s Disease May Be Meaningful for Some People A decision no one takes lightly The question of undergoing a genetic test for Huntington’s disease is not
March has a reputation. It’s the month that whispers “new season” before the world is fully ready. The light changes. The air softens. People start talking about spring cleaning, fresh
This document outlines key areas to share with your loved one’s care home staff. Please note, the information below is based on personal struggles/challenges with care homes experienced by my
Dear Huntington’s Disease Community, We are writing to share an update following our recent Type A meeting with the U.S. Food and Drug Administration (FDA.) On March 2, 2026, uniQure
Harness Therapeutics Nominates HRN001, a First-in-Class Drug Candidate for Huntington’s Disease and Establishes Clinical Advisory Board Cambridge, UK, 16 February 2026: Harness Therapeutics (‘Harness’), a biotechnology company unlocking previously undruggable
There is a question I’ve been asked in many forms since my diagnosis: How do you live a meaningful life with Huntington’s disease? Sometimes it’s asked gently, sometimes with curiosity,
Novartis development of Votoplam in HD: INVEST-HD Phase 3 trial information now available February 3rd 2026 Dear Huntington’s disease Community, We are delighted to share an update on the development
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