Categorie: Nieuws

Ashley Clarke, HD Advocate, deelt haar ervaring in het hoofdkantoor van uniQure

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Rise Against Huntington: hoe twee jonge middelbare scholieren $2000 inzamelden voor de Ziekte van Huntington

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]

Nationale Dag van de Ziekte van Huntington officieel ingesteld in Brazilië

After being approved by the Chamber of Deputies last year, the Bill 5060/13 was finally published in the Official Diary of the Union last month, 21st of June, establishing the […]

Dimitri Poffé (Explore for Huntington) laat zijn avontuur zien in een nieuwe documentaire

The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to […]

MENA Organisatie voor Zeldzame Ziekten Jaarvergadering & Tentoonstelling 2024

MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai […]

PTC Therapeutics deelt positieve tussentijdse gegevens van de PIVOT-HD klinische studie bij patiënten met de ziekte van Huntington

June 21, 2023 PDF Version – Dose-dependent lowering of blood Huntingtin (HTT) protein levels at 12 weeks –– Favorable tolerability profile with no treatment-related serious adverse events or NfL spikes –  – Conference […]

uniQure kondigt een update aan van de Amerikaanse klinische fase I/II-studie met AMT-130 gentherapie voor de behandeling van de ziekte van Huntington

~ AMT-130 continues to be generally well-tolerated across both dose cohorts ~ ~ Patients treated with AMT-130 show preserved function compared to baseline and clinical benefits relative to natural history […]

Nationale Ziekte van Huntington Dag in Portugal

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) […]

Het is mei bewustzijnsmaand!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by […]

PRILENIA KONDIGT RESULTATEN AAN VAN DE PROOF-HD STUDIE: VEELBELOVEND, MAAR GEMENGDE RESULTATEN!

Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant benefits from the Pridopidine drug, while others did not benefit at all.  This […]