SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical study with SOM3355 as a treatment for Huntington’s chorea has Lees meer...
Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael Hayden, CEO of Prilenia “Pridopidine demonstrates consistent treatment benefits across Lees meer...
Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease. They have discovered that two small molecules, called SPI-24 and SPI-77, can effectively reduce mutant Lees meer...
It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only playing an important role in the HD community, but also Lees meer...
~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean CSF NfL continue to demonstrate favorable trends with low-dose patients Lees meer...
Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an informative and occasionally overwhelming experience for me. Community, compassion, and Lees meer...
The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not only benefits those affected by the disease but also raises Lees meer...
Ashley Clarke is niet alleen ambassadeur voor de Huntington's Disease Youth Organisation (HDYO), maar is ook een voorstander van de HD-Community Advisory Board (HD-CAB), een groep die de stem van patiënten vertegenwoordigt bij het ontwerp en de uitvoering van klinische studies. In navolging van Lees meer...
Jasmine en Sai zijn middelbare scholieren uit de VS. Het zijn twee jonge mensen die vastbesloten zijn om een verschil te maken en anderen te inspireren om hun voorbeeld te volgen. Een fondsenwervingsinitiatief dat ze onlangs hebben opgezet en beheerd, heeft een ongelofelijke $2000 opgebracht. Lees meer...
Na goedkeuring door de Kamer van Afgevaardigden vorig jaar, werd het wetsvoorstel 5060/13 vorige maand, 21 juni, eindelijk gepubliceerd in de Officiële Agenda van de Unie, waarin 27 september wordt uitgeroepen tot de Nationale Dag ter Bewustwording van de Ziekte van Huntington. Lees meer...
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