Archieven

SOM Biotech rondt het rekruteringsproces af in de Fase IIb studie naar de behandeling van chorea bij de ziekte van Huntington

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

Prilenia is van plan een vergunningaanvraag in te dienen in de EU voor Pridopidine bij de ziekte van Huntington

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Doorbraak biedt nieuwe hoop voor HD-patiënten

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

De Internationale Huntington Vereniging is nu lid van de Zeldzame Ziekten Vereniging!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure kondigt een update aan van Fase I/II klinische studies met AMT-130 gentherapie voor de behandeling van de ziekte van Huntington

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

Inzichten van de HD-community: Kennis, empathie en aanmoediging - de EHA-conferentie inspireerde me

Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an […]

Empowerment van gemeenschappen: Een overzicht van recente initiatieven van de Braziliaanse Huntington Vereniging (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

EHDN Plenaire Vergadering en Enroll-HD Congres

Het EHDN en Enroll-HD 2024 is een gezamenlijk evenement dat de EHDN Plenary Meeting en het Enroll-HD Congres combineert. Het evenement wordt verspreid over drie dagen gehouden en biedt [...]

Ashley Clarke, HD Advocate, deelt haar ervaring in het hoofdkantoor van uniQure

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Rise Against Huntington: hoe twee jonge middelbare scholieren $2000 inzamelden voor de Ziekte van Huntington

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]