Archiwa

SOM Biotech kończy proces rekrutacji w badaniu fazy IIb leczenia pląsawicy w chorobie Huntingtona

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

Prilenia planuje złożyć wniosek o pozwolenie na dopuszczenie do obrotu w UE dla pridopidyny w chorobie Huntingtona

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Przełom stanowi nową nadzieję dla pacjentów z HD

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

Międzynarodowe Stowarzyszenie Huntingtona jest teraz członkiem Rare Diseases International!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure ogłasza aktualizację badań klinicznych fazy I/II terapii genowej AMT-130 w leczeniu choroby Huntingtona

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

Spostrzeżenia społeczności HD: Wiedza, empatia i zachęta - zainspirowała mnie konferencja EHA

Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an […]

Wzmacnianie pozycji społeczności: Podsumowanie ostatnich inicjatyw Brazylijskiego Stowarzyszenia Huntington (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

Spotkanie plenarne EHDN i kongres Enroll-HD

EHDN i Enroll-HD 2024 to wspólne wydarzenie łączące spotkanie plenarne EHDN i kongres Enroll-HD. Wydarzenie odbędzie się w ciągu trzech dni i będzie okazją do [...]

Ashley Clarke, rzeczniczka HD, dzieli się swoimi doświadczeniami w siedzibie uniQure

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Rise Against Huntington: jak dwoje młodych licealistów zebrało $2000 na rzecz choroby Huntingtona

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]